Pain after all this

I had a full hysterectomy last year because they said I had endermetrious and after they went in the first time I was still in so much pain so they toke it all out ever since pain than I can't imagine idk what to do been all over now a year later they say it's perment nerve damage started me on gabapentin hated it so I don't take it now hopefully getting something else it has ruined my life and I have wanted to give up many times except I'm a single mom so thats not an option can anything help me heating pad is my best friend

4 Replies

  • I’m sorry you’ve had such a bad time. Surgery can lead to all sorts of problems, like adhesions and nerve damage. I had both after my hysterectomy and had to have the adhesions divided a year later. How long did you take gabapentin? It takes a couple of weeks for your body to adjust and to find the right dose to relieve the pain. It’s not pleasant but once you’re used to it, the side effects usually subside. I’ve taken it on and off for 5 years and it does help my nerve pain. Not many pain medications work for nerve damage. X

  • I’ve been taking it for a while... I am lucky as I get minimal side effects and it definitely reduces the pain. I titrated up over 3 weeks so didn’t notice anything. Makes you fat though 😁

  • So does pregabalin and amitriptyline. Feel like Mrs Michelin woman ha ha. Weight gain is inevitable which ever one of these meds you take, then to top it of acid reflux because of the weight gain, then yet another script for lonzaprazle , then the drs want to review your meds every 12months. Sorry but nerve pain is a life time so will be the meds (idiots they be)

  • Hi I had a prolapse repair and a tot for mild stress incontinence back in 2012 suffered long term pain and was put on pregabalin and amitriptyline eventually and these are the only 2 meds that eased my nerve pain. despite the dr trying to change my pregabalin for gaberpentin in the earlier years,even though I was getting relief for the first time in 12 months I stood my ground and have been prescribed pregabalin ever since. The drs do not understand how bad this pain can be and they always want to try to change our meds that really help to some other meds that are cheaper and do nothing for us but leave us in agony and as you say it has ruined our lives. I know exactly what you mean by this. this is how I felt after a year of the wrong meds nothing helped and no one understood why we are in such agonising pain. Doctors need to be educated more on nerve pain then we wouldn't have to trial everything else first. hope this helps

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