Leaking urine..... :(

[avelvetcrowbar]

Hi everyone. I feel like I'm posting so many different problems on here at the moment. I'm not overly well.

The past few years with my endometriosis and my polycystic ovaries I'd started to develop urinary issues. For years I've continuously suffered with utis, kidney infections and so on and was referred to urology after I had about 9 or 10 infections in less than a year. I ended up having a cystoscopy which was meant to rule out intersistial cystitis, I was diagnosed with an overactive bladder and put on solifenacin and amitriptyline, since the cystoscopy in particular I've been having an issue with smelling strongly of urine and my underwear is often wet even though I've been going to the toilet frequently, wiping properly and trying to go as soon as I feel the urge.

It's so embarrassing and i feel like it's just another problem for me to deal with. I'm feeling really self concious as the smell is strong and smells terribly of ammonia. I'm pretty certain I have another water infection at the moment (it's hard to always tell as it always hurts me to wee) along with fever, stomach ache, pains in my lower back but am reluctant to go back to my gp as I've been tried on so many antibiotics- some for months on end which have made no difference- which resulted in me being referred to urology in the first place.

Me and my gynecologist are wondering if my urinary issues are a result of endometriosis and I'm on the waiting list for another laparoscopy due to my endometriosis getting more severe but at the moment it's the urinary issues that are really dominating my life.

I get up every night to wee, I've been drinking filtered water, trying to cut out caffeine and such but it just seems to be worsening. I can't necessarily feel myself leaking-I'm certain it happens most at night whilst I'm asleep but no matter what my pants are always wet and I smell strongly of wee.

I'm 24 and not overly overweight. I was about 12 stone when I last weighed myself although I've been walking twice daily and might have lost a little weight over the past 2 months.

I feel really awful about myself and pretty embarrassed that this is happening constantly. I'm due to go back to my final year at university doing my degree and my urinary issues really have a profound effect on my concentration.

Does anyone have any advice on what I can do? Solifenacin has helped with the amount of times I urinate but it feels like I've hit a wall in terms of anything making a difference.

Any help/advice would be brilliant

Sorry for the long post.

Jordan-Melissa

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[jacquieb Volunteer]

Hi Jordan-Melissa, I so sympathise with you and can confirm for sure that you still have an infection. The ammonia smell and burning as well as leakage is the biggest signs of an UTI. First thing is to cut down your water intake before you go to bed, and to make sure that you have finished going for a pee before you wipe yourself. Sometimes it takes quite a while, stop start, stop start, but that should help a little. I know a fair amount to do with UTI's, chronic ones at that. What a/b have you taken in the past? The longest amount of time you have been on them? The problem is finding the right a/b for the offending bacteria, which is difficult. Certain foods and drink can make it worse as you probably know. I have never had an cystoscopy, not sure what they actually prove? just my opinion.

[Woodland16 in reply to jacquieb]

Jordan-Melissa

I read your post and thought someone was writing about me. I have been treated for pelvic pain for almost 10 yrs and also sell pelvic pain cushions online at marvelcushion.com. I find now that I am having frequent urination along with either UTIs or yeast infections. My problems are very similar to yours and I am trying to get a diagnosis on them. I do know that acidic drinks aggravate my problems. Please let me know if you find a cure to your problems. I take many medications and don't want to add to them. I am already taking meds for my meds because they cause dry mouth from the meds. I share your frustration but I am glad I no longer suffer with the pelvic pain issue.

[avelvetcrowbar in reply to Woodland16]

I know exactly what you mean about the dry mouth. I have this too. It's like a vicious cycle because you drink more to quenchanting your thirst and then you need to wee more which just hurts even more. I'll have to check out your cushions! They sound really interesting. I'm sorry that you're suffering too though, I'm exactly the same. I have another water infection again so am feeling really down in all honesty. If I do find anything to really help I'll let you know! Thankyou so much for your comment

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