Hi, I have a cluneal nerve entrapment of the Iliac crest diagnosed after 5 years of misery, by Mr Fitzgerald at The Spire, in Manchester. He told me that it is a common yet poorly understood condition. I told my pain clinic at Hope Hospital, who said they had never heard of the diagnosis.
I have had a number of nerve blocks which have been hit and miss. I contacted a consultant in the UK , who had trained under Dr Robert in Nantes. He told me that he recommended that I go to Nantes for treatment as Dr Robert developed this operation for cluneal nerve entrapment of the iliac crest.
Knowing that people can have treatment for Cluneal Nerve Entrapment treatment in Nantes, France. I wondered if anyone here has taken this route and how much in total it cost for everything ? I need to be able to calculate an estimate for the everything ( so I can figure out hotel prices dependant on number of stays and flights )
I wondered if anyone has been to see Dr Robert in Nantes ?
What is the process for getting an operation under Dr Robert in France ?
Did you have to go on separate occasions for the consultation, pre op and post up and how much were each consultation ?
How long did you have to stay prior to the treatment and after for follow up ?
How much was the treatment in Nantes for Cluneal nerve entrapment ?
Did or can you get help through the EU Directive to pay for some of the costs ? ( since this operation is not in the UK )
Finally, has anyone had positive results from this treatment ?