Inferior cluneal nerve pain - Pelvic Pain Suppo...

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Inferior cluneal nerve pain

Allthatjazz123 profile image
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Saw pain consultant in Bristol who is now saying that he feels I am presenting Inferior cluneal nerve pain. Firstly, is anyone else suffering this. Would like to share. Secondly he's saying that the only person who can help is Dr Roberto in Nantes. I do not want to go to France for surgery. Any other ideas welcome. We're going to start with a steroid injection to see if that helps. Thirdly, how does one get a definite diagnose of this nerve. I'm fed up with heresay. Be grateful for any help please.

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Allthatjazz123
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Hi I am diagnosed with the same syndrome, I was in France too, what have you done lately ?

I'm waiting for a nerve block to rule this in or out. Apparently pain down the back of my leg isn't PN related. But I think it is just cross talk with all the nerves down there, or from tight pelvic muscles.  Will wait and see! 

in reply to

HI, HOW ARE YOU? DID YOU DO ANYTHING LATLY ? HAVE YOU FIND A SOLUTION?

in reply to

I'm still waiting for a nerve block. Saw pain consultant last week, now on a waiting list for a ct guided pudendal nerve block and an inferior cluneal nerve block. So no further forward yet! But I'm seeing a chiropractor weekly and that seems to be helping slowly. He is trying to loosen/relax all the muscles that attach to the pelvis. Painful but showing small improvements. I can walk much better, no limp any more!

in reply to

thank you, where are you doing the blocks? not many doctors know to do the inferior cluneal, i will go specialy to france

in reply to

Going to Bristol. What treatment are you having?

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Drm532

Hi.email me

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