Is there any charitable organization to help me?

[titosantanov]

I suffer pudendal nerve entrapment for fifteen years and I have been told the only solution is to have an operation in France and I don't have the money, is there any charitable organization can sponsor this operation?

[XHelp]

Im sorry but I have no idea but just wanted to wish you the very best of luck in your search love Karen xx

[paulyne]

I too suffer from PNE, it's devastating and life changing and I really feel for you. I have had a couple of nerve blocks, although they haven't helped yet, I've been told there is a 33% that they may. I just wondered if you've had any yet. Also do you take any medication?

My heart goes out to you xx

[titosantanov]

Gabapentin might help

[hens]

Hello. I am so sorry I don't know of any charity but just wanted to ask if you had exhausted all avenues in UK ? Dr De Mello / Dr Greenslade and others who are mentioned on this web site .

[titosantanov in reply to hens]

I live in Egypt, we have here Dr Shafik sons but they are both ignorant pick pockets.

[sezan]

hi there,

I am so sorry to hear your sufferings. I have PN and/or pelvic pain too. At the moment getting some physio treatment and buying a book for self-treatment.

I know an website where they claim to assist people with PNE financially who don't have sufficient fund. But one needs to meet some criteria before apply. I don't know much more than that. But worth a try.

website pudendalhope.info

under I want to

choose apply for assistance

Then fill in the form meeting the criteria.

Besides that it is an excellent website for pne and pn education and support.

I wish you the best!

[titosantanov in reply to sezan]

I already contacted them and they didn"t answer

[Sarah33 in reply to titosantanov]

I wrote to them too and they didn't answer. Wrote a very polite follow up and they also didn't answer that

[titosantanov in reply to Sarah33]

They (pudendalhope) donated me $1000 for my surgery.

[Limbo]

Check out PeudendalHope.com. My son has PNE and we too are searching for solutions both physically and financially. We have been to Houston to see Dr. Ansell, but the surgery is only 40-60% successful. Just read about Dr. Aaron Filler in Santa Monica, Ca. that does some type of image guided laproscopic surgery and claims 85-90% success rate. He claims that he developed the MRN and there are 3 areas in which the peudendal nerve can be entrapped. Will try to find out if anyone on this site has been to Santa Monica and seen Dr. Filler.

[titosantanov in reply to Limbo]

Traveling to France is a lot cheaper and extremly better, don't trust Filler

[Limbo]

How is it cheaper to travel to France? What is air fare, hotel cost, hospital cost and any other expenses to encounter?

[titosantanov in reply to Limbo]

It is only € 4300 for the operation