I have a cluneal nerve entrapment of the iliac crest.
I fell 8 years ago on ice and have not been the same since. I was passed from one doctor to consultant all sure I had : fibromyalgia , facet joint and even told it was in my head. The reason being, my spine looked fairly healthy for a women my age .
My chronic pain has affected my life beyond measure. Finally, after a terrible flair up, i went private and found Mr Andrew Fitzgerald , orthopaedic at The Spire . I was given an MRI again and when he examined me, pressed near the cluneal nerve , i yelped. At last i had a diagnosis 6 years from the original fall . I was given nerve blocks which have been 50 /50 in success.
Last august 2013, i slipped on metal stairs that were wet and fell, breaking my wrist and damaging the cluneal nerve more along with adding a Tarlov cyst symptomatic to the base of my spine ( yes i have put a claim in ) i have not been able to work for a year.
I cannot stand or walk for more than 15 mins and although on 50mcg Fentanyll patches of morphine, i still walk with a cane at 31 years old.
I have read on here about nerve decompression surgery in Nantes , France, under Dr Roberts. Along with Dr Christopher Wong in Bristol, who trained under Dr Roberts. I wondered if these doctors offered nerve decompression for cluneal nerve entrapment . Also, i realise Dr Roberts in France is private, so how much the surgery costs and sucess rate percentage. If Dr Wong in Bristol, is he private and how much is surgery ?
I feel like the NHS only puts a plaster on the problem with nerve blocks that are 50/50 . They do not address the root cause and address it .
If you have any info please let me know