Hello🙂 Did Pelvic Floor Therapy help you for your Pudendal Neuralgia or Vulvadynia? If so, how long did it take? Thank you all so much for answering these questions?
Pelvic Floor Therapy : Hello🙂 Did... - Pelvic Pain Suppo...
I had PT for vulvodynia which involved a desensitisation routine which the PT taught me to do each day at home, with graded steps as my tolerance to touch increased. I think I was about 60 % improved after 6 months. It took a few years to get to where I am now at about 80% improved. I found it more difficult to learn to relax my hypertonic pelvic floor muscles which go through different phases of not too bad up to painful. If you'd like to know details of the desensitisation routine you can private message me. Hope this helps x
I would be really interested in your desensitization routine also.... if you could pass me info would really appreciate it. I have been diagnosed with Pudenal neuropathy which at first they thought was vulvodynia, but I still feel it is more vulvodynia and it all drives me crazy as I sit down all day at work and cannot seem to get on top of it. So delighted for you that you are feel a good way better x
Pelvic Floor Therapy did help me quite a bit - relaxed the muscles and taught me to relax them on my own as well. I can now control mos of the flare-ups as they occur. I used to panic when they began but I now know what to do to minimize the effects. The key is to not let you mind run wild and panic.
I am still taking Lyrica as well as doing the pelvic exercises. Happy baby pose, hamstring stretch on a door jam, leg crosses while laying down ,etc. I have taken them from a variety of places. Just found what works for me. Main thing is to find a PT that you can not only get treatment from but talk to. No one understands this issue when u try to explain. If u don’t have a good PT I have a nationwide list. I can send to you if you want to send me your email privately. FYI I am in southern CA.
I was wondering if you have side effects from Lyrica what they are and if they go away after you taking it for a while I'm about to try gabapentin which I hear is less invasive than Lyrica but supposed to work.... I was also wondering if you had tried any pain blocks Botox cryoablation anything like that and if you had a nerve MRI to see if it was an entrapped nerve or just neuralgia? I think I've spoken to you before but there's so many people that I may have forgotten...thanks
Lyrica makes me loopy after a while, weight gain that's tough to control, tired at times - just don't feel right sometimes. I have not tried a nerve block or had an MRI - been able to control things with PT and Lyrica - stretches and light exercises. Going to see a pain specialist in 6 weeks to see if he has ideas to get me off the drugs.
Yeah I took Flexeril for 3 and 1/2 months had no pain at all when I was taking that then I slowly came off at and now I have some pain after bowel movements and I never quite feel like the rectal area is out of pain but it's a lot better than it was after 8 months of physical therapy... But now I'm starting to think the physical therapy flares it up...I do have a wand that I do vaginally but the pain is in the inferior rectal branch of the pudental nerve I've had an MRI and a CT scan but I'm afraid to have a colonoscopy in case it flares it up really bad... I'm going to be trying gabapentin now just to see if that helps with the rest of the pain .. it's manageable but after a while it just gets you down and you want to be normal again I haven't done any of the nerve blocks or any of that stuff but I think now that my muscles are relaxed the nerve is less irritated...I haven't been taking anything for the last two weeks I'm just doing my stretches and breathing meditation and it's been okay but feels irritated especially after bowel movements... I may do another course of the Flexeril since it helped so much along with some gabapentin... I hope the doctor can tell you what you can do to get off the meds but I've come to terms that we maynJust have to be on meds long term
Mine s inferior rectal too sometimes it spasm in sitz bone... I am able to sit down for short periods of time I have one of those gel cushions that I keep everywhere with me and I also I'm using some compounded Valium/lidocaine suppositories my doc prescribes for me from the compounding pharmacy and I'm just using one of those every night.... Are you taking any medications or doing any acupuncture/ chiro /pain/nerve blocks??
I'm also doing physical therapy I forgot to add that just helped a lot pelvic floor therapy for eight months and this time last year I was in excruciating pain but now it's a lot better or do breathing meditation and stretching at home also... Did you have to see to scan or MRI I mean how did you get diagnosed as what I'm trying to ask?
Good Morning yes I can tell you to get the book Healing Pelvic Pain by Amy Stein also there is a yoga dvd that I used titled Your Pace Yoga Reliving Pelvic Pain by Dustinne Miller I have combined both into a yoga/stretch work out that I do daily I also meditate when the pain gets really bad...I hope this helps you as it has me keep in touch