I have it in rectal anal area radiating to vagina. Everyone just talks about vaginal---what about constant pain and burning in rectal area? It flares up at 3am every morning like a blow torch. I can only sit on donut pillow and constant ice packs day and night. No one here in US seems to know about it. Feel like foreign object in rectal area. Had spinal cord surgery three years ago, and this problem started gradually after. I have been to every kind of Doctor and they act like I am nuts!!! I have become homebound. Cannot walk or stand without distress. Had in
injections and epidural, hysterectomy, hemmorhoids, rectal surgery for fissure. All of this was suppose to cure problem---nothing helped. On top of everything I have neurogenic bowel, so have to disimpact, which sets nerve off even worse. I feel suicidal at times! I can find no hope or help anywhere. I have read the forum about vaginal pudental neuralgia, everyone seems to be out of US. Cannot find PT who might be able to help---they just seem to deal with vaginal! Can't find anyone in my area. I live in Pa. Collingdale, US. I have done research on PN site.
Again everyone seems outside of US. Can anyone help me please. I have no life for three years now.