Pelvic Pain Support Network
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Pudendal nerve and constipation

Does anyone have any constipation pain that affects both your rectum and your vagina? Even when I have to use a enema I can feel the coolness of the liquid sensation in my vagina. I just had a colonoscopy and check up and everything was ok. I explained this issue to the physician and he asked me if I had any stool leakage from the vaginal area which I don't so he didn't have a clue. I have a constant fullness in both areas all the time even when I'm not constipated which makes my pain even more unbearable. And when I do have a bowel movement it irritates my vaginal area and it feels like it could come out of that area.

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Hi Liz I have the same mine is down to prolapse I’m sure not pudendal nerve though I get obstructed defecation and have to use enema I can feel every sensation in my vagina

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Hi kphee21, Thank you so much for replying. I didn't even think about getting check for a prolapse. I had a Hysterectomy and a bladder lift in 2010 and they put a tvot mesh in me I had it removed in 2015 I've had constipation problems I used to have to in impact myself to go plus a lot of straining now I can't go unless I take a bunch of laxititives then use a enema. I've tried all the opioid laxatives and none of them work. The gastrenologist said it's because of my pain and the nerves and possible pudendal nerve entrapment. I just read up on the prolapse and a lot of my symptoms fit. I have an appointment with Kelly Scott UTSW The Treatment of Chronic Coccydynia and Postcoccygectomy Pain With Pelvic Floor Physical Therapy. Hopefully she'll be able to finally get me some help and relief I need and then if it is pudendal nerve entrapment then I'll have to go from there. I just know right now everything I've done with the pudendal nerve, the blocks etc isnt working.

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Hi liz I had hysterectomy 17 weeks ago and things have got worse like you I have had injections but to no avail I do have pelvic floor decent but sur I have rectal prolapse or enterocele either way it’s agony I have to use laxatives and enemas to empty rectum but enemas seem to cause so much irritation

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Hi Kphee21, I hate to hear that you had to have a hysterectomy also. I keep reading post about women having issues with pudendal nerve because of having a hysterectomy but also because of having a bladder lift using mesh. And now that you had mentioned about a prolapse it fits my symptoms also. It's so confusing and hard to find a doctor to pin point exactly what the heck is wrong with me. I'm praying that you find a doctor soon that can get you healed up and on your way to a pain free life. It's been 7yr 8 month nightmare for me.

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Hi liz I had ny hysterectomy after they thought I had pudendal nerve pain I have had injections into the nerve but no use my pain escalates when I get obstructed defecation that seems to be every day at the moment I’ve not been suffering as long as you mines been 3 and half years but seems like a life time it takes so much away from you doesn’t it...I’ve got myself in a bit of a dark hole this few weeks trying to snap out of it x

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Sweetie any length of time in pain seems like a life time. I understand your pain believe me. I've been in that dark hole for a long time. It's hard. And it's hard to act like nothing is wrong when everyone is around when all you want to do is cry. My life right now is living in my reclining in my recliner on my side with a ice pack between my legs waiting for the day to be over with so I can take sleeping pills to go to sleep because that's the only time I'm pain free. I'm here if you ever need to talk. Hugs

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Hi Kphee21 did you read Lexi post to me about the tea for the constipation? Its called smooth move. I looked it up and they sell it at Walmart and other places. I'm going to give it a try. They're are different kinds I may get a variety and see which works the best if they work fingers cross. It can't hurt to try. Tried everything else.

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Hi liz I did read lexis post about smooth move I had a quick look last night and as I’m in the uk stores don’t seem to stock it will see if I can get it on line anywhere

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Awe liz it sure is life changing isn’t it where in the usa are you? I’m manchester uk. Yes ice packs are my best friend too have you had any treatment for it liz

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Kphee I'm in Texas, I am going to order from Amazon it's to hard to shop at Walmart. As far as treatment gosh seems like I've tried everything. I did the pelvic floor therapy in 2013 for about 2 months and she's the one that told me that my pudendal nerves was the cause of my pain. After the sessions I felt good but as soon as I got in the truck to drive my pain returned. I did the medicated vaginal suppositories, did the bladder instills. Then in 2017 I had a medtronic nerve stimulator implant I thought my prayers were answered I got 100% pain relief he put the leads in my sacrum but after 3 weeks my pain came back. We tried so many different programs and couldn't get it to give me any relief at all. He finally told me that he couldn't do anything else for me so I ended up with another pain management physician. April 2 of this year I had my leads revised he sutured them to the nerves in my back but it still didnt work. So now I'm waiting on a pain pump trial to see if it will give me any relief from this pain since the oral pain medication does nothing. Plus going to that pelvic floor specialist Kelly Scott. I do know that my rectum pain wasn't as severe until I had pudendal nerve block. I also ended up with a moderate case of interstitial cystitis after my hysterectomy and bladder lift so certain foods causes my bladder to flair which makes may vagina and rectum hurt even worse too.

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😢 I’m in dark hole as well

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Hi Tnny, I'm so sorry, I know how you feel and It's hard not to be depressed living in pain day after day. There's got to be a cure, help, something to get us out of this miserable severe pain.

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Yes I have both vagina and rectal pain for 13 1/2 years. I’m just so tired with little answers.

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Yes I have had both vaginal and rectal pain and constipation for 13 1/2 years. I have burning vaginally mostly, rectally I have pain and burning. Can’t use a suppository, last time I used it I had terrible burning. I did find something for constipation. It’s a tea called smooth move. Not regular tea, you soak the bag for 15 min. and cover it. As far as anything else I really have no answers. Just hope you have a good Dr and try everything, never give up. I haven’t!

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Hi Liz, I have a prolapsed vagina and I’m waiting for a hysterectomy and bladder/bowel repair. I’ve had severe constipation for years partly due to the pelvic prolapse. I have found a great cure (help is a better word) it’s called Uncle Lees tea, it’s a Chinese tea and a very strong herbal laxative. I buy it in bulk from Amazon and take a cup in the morning and a cup before bed, I let the tea bag soak for 15 minutes before drinking it. When you first start using it you get stomach cramps but your body adapts, it does cause loose stools but it’s great at emptying your bowels, this relieves the pressure and pain in the pelvic area. The one you want is in a green box, it’s not cheap but it’s the best laxative I’ve found, I’ve used it for 3 years now.

Best of luck with it, I hope it helps you.

Catherine x

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Thank you so much Catherine1959 a lady just told me about a tea called smooth move I just ordered it Friday evening. If it doesn't work I'll order the Uncle Lee's. I don't mind the cramps or the price as long it will help me go. I appreciate you letting me know.

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Hi liz I am quite certain that my pudendal nerve pain/damage/entrapment whatever it is, has been caused by many years of IBS with chronic constipation. Even now, my pain is directly related to incomplete evacuation and always begins in the rectum . It feels like a hot lump is stuck there and then progresses to excruciating hot pain in my vagina. Oxycodone, a hot bath and my hot pad covering both anal and vaginal areas, are all needed to calm the pain. I take 20mg oxycodone split up throughout the day and recently added 25mg Amitriptyline at night and 10mg in the am. This has helped enough for me to try doing only 10mg of the oxy each day. I want to stop the oxy, but can't because the amitrityline alone cannot stop the horrible pain attacks even with the hot baths, hot pad and lidocaine 5%cream

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Hi Tp2018, I've dealt with constipation for as long as i can remember but I never had the vaginal pain till my hysterectomy/ bladder lift with TVOT Mesh and then when I had my pudendal nerve block caused my rectal pain and each block made it the rectal pain worse. I to feel like there's always something still there stuck in my rectum area but also in my vagina. I've tried heating pads it just irritates me. Now hot baths feel great. I have to do ice packs constantly. Oxycodone is a medication I've never been on. If this combination of medication helps your pain some then I'd try to stick with it. I know nobody wants to have to take opioids but who wants to suffer in pain. I sure don't.

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