PELVIC PAIN, OVARIAN FIBROMA - Pelvic Pain Suppo...

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PELVIC PAIN, OVARIAN FIBROMA

edysia2 profile image
6 Replies

Hello everyone, I am sorry for brief post but I am really weak due to my illness and is very hard to write.

I would like to ask if anybody here has experience of treatment/removal of OVARIAN FIBROMA.

I do have fibroma on my right ovary WHICH CAUSES ME A LOT OF PAIN IN PELVIS AREA ( right ovary) but pain is spreading to the left side unfortunately.

I have visited a surgeon at UCHL (London) but they refused to remove it as I do suffer from hypothyroidism which is not under control( I do not respond to thyroid medications at all, hypothyroidism was and still is a long battle... the story is so long and I do not want to bore you with the details)

So I am in a very bad general health state and have this fibroma that needs to be treated.

UCHL refused and I do not know where else to go. I live here but I have not much experience with UK hospitals as I am not form UK originally. I am in despair and I do not want where to go or turn.

I am very scared with the entire situation as I do not have any family or real friends to support me with all this, sadly my parents passed away a few years ago, I came from abroad to UK and settled, I am not able to go back to my own country because I lost all my connections and family home there. I lost my career due to illness... Illness caught me here in this impossible situation. I had a very bad experience with doctors so far, I do not want to be pushed away and left with no help again :(

CAN ANYBODY SUGGEST ANY HOSPITAL OR GYNECOLOGICAL SURGEON PLEASE SEND ME A MESSAGE. I WOULD BE VERY THANKFUL FOR ANY SUGGESTIONS.

WOULD YOU RECOMMEND HAMMERSMITH HOSPITAL? QUEEN CHARLOTE'S & CHELSEA HOSPITAL, ST MARY'S HOSPITAL OR ANYWHERE ELSE?

I live in Leicester but I would travel if I found a doctor that is experienced and ready to deal with a risky case.

THE TUMOR WAS BENIGN A FEW MONTHS AGO BUT THERE IS A RISK OF MALIGNANCY, ALSO IT DOES DISTURB WITH TREATMENT OF HYPOTHYROIDISM,AND I AM STUCK IN A VICIOUS CIRCLE OF RAPIDLY DETERIORATING HEALTH.

PLEASE, PLEASE,PLEASE HELP ME. THANK YOU IN ADVANCE.

edysia xxx

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edysia2
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6 Replies
PPSN_JudyB profile image
PPSN_JudyBPelvic Pain Support Netwo

Hi Edysia,

Have you seen an oncology gyne surgeon ? if you can 't get help here would you go abroad ? thinking about France

edysia2 profile image
edysia2 in reply to PPSN_JudyB

Yes I have seen but as I said they wont do surgery as they think is too risky in my state. I would love to go to France or anywhere else but I have no money, I am unemployed due to illness and have no family. Thank you for your reply.

E

juliansmom profile image
juliansmom

I'm so sorry I wish I had something better to say. Keep searching, don't give up, be aggressive in getting proper treatment that you deserve and you'll be in my prayers.

edysia2 profile image
edysia2 in reply to juliansmom

Thanks xx

MudPie profile image
MudPie

I don`t know if this will help you but here is a link so you can search for a consultant in the UK. You can check what they specialise in and can ask your GP to refer you or write direct to them I think.

drfosterhealth.co.uk/consul...

edysia2 profile image
edysia2 in reply to MudPie

Thank you MudPie, I have tried everything. x

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