Good news!!!!: Hi everyone Diagnosed with... - PBC Foundation

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Good news!!!!

Lcagar63 profile image
34 Replies

Hi everyone

Diagnosed with pbc in June and have been taking urso since June. Went back to consultant in Paddington , London yesterday . Consultant said my bloods have really come down to almost normal.in June they were 380 now 140. I am really over the moon.taking urso 1000mg a day. 2 in the morning 2 in the evening. The consultant said when my bloods are this level less restrain on the liver.i was expecting more gloom and doom.could not be happier. Don't have to see consultant until April, wanted share my good news with my fellow sufferers.

Love you all x

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Lcagar63 profile image
Lcagar63
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34 Replies
Sweetness_1 profile image
Sweetness_1

Great news

Puddles profile image
Puddles

That is fantastic news :-)

Emma715 profile image
Emma715

That's great news. I'm about to start urso. 😊

Lcagar63 profile image
Lcagar63 in reply to Emma715

Hope you have as much luck as me I feel so happy .

Starfish72 profile image
Starfish72

Fantastic news! Enjoy life x

Lindymarie profile image
Lindymarie

Fab news. 😀X

butterflyEi profile image
butterflyEi

Lovely to read your post. Great!

Crozes1 profile image
Crozes1

That's wonderful 😀

Rockie profile image
Rockie

Lcagar63 I am so happy for you.

Lcagar63 profile image
Lcagar63 in reply to Rockie

Thanks rockie really kind

SammyjoW profile image
SammyjoW

That's fantastic news x

auntym profile image
auntym

Aw, that's great. I am really happy for you.

Lcagar63 profile image
Lcagar63 in reply to auntym

Thanks auntym really kind

Shine1 profile image
Shine1

That's great to hear, bet that was a relief x

Lcagar63 profile image
Lcagar63 in reply to Shine1

So happy!!!

moepag profile image
moepag

Good for you! So nice to hear about positive outcomes!

liver-bird profile image
liver-bird

Delighted for you - enjoy your life x

Fabulous news xx

Becca75 profile image
Becca75

fantastic news!!! I'm really happy for you :)

AdeleMalcolm profile image
AdeleMalcolm

That's a great result. I'm on 750g and due for my first blood tests in 10 days since starting on Urso. Fingers crossed I get as positive result. Stay well.

Lcagar63 profile image
Lcagar63 in reply to AdeleMalcolm

10 days is not that long but hopefully you will see a slight difference. I had been taking it for 20 weeks. Good luck.

AdeleMalcolm profile image
AdeleMalcolm in reply to Lcagar63

Hi Lcagar63. Sorry for poorly written response...I've been on Urso since mid July so it'll be nearly 20 weeks by the time they take some more blood so just about the same as yourself. Just hoping I'm in the 50-60% who respond to Urso! Time will tell all.

Lcagar63 profile image
Lcagar63 in reply to AdeleMalcolm

I thought ten days seemed a bit strange!!!! Let us know how things go.hopefully you get good results. Fingers and legs are crossed for you x

AdeleMalcolm profile image
AdeleMalcolm in reply to Lcagar63

Sorry for tardy response! Blood results carried out by GP showed LFTs all in normal range (yeh!). Doc at King's ran a load more but I'm out of the country just now so have to wait for the results thatll be waiting for me. Not expecting anything of note.... fingers crossed. Next step is the bone density scan in March. Hoping all good there. Adele

boneytoys profile image
boneytoys

That's my version of pbc

10 years later still well

Onwards and upwards

Lexi_Img profile image
Lexi_Img

That's great news! Do you think you would ever go off the med if you have normal readings?

Lcagar63 profile image
Lcagar63 in reply to Lexi_Img

My consultant told me to carry on taking urso and come back in April 2017. I don't think I will come off urso even if bloods are good. I used to feel awful without it. I feel really good now. I don't want to go back down hill!!!

Ginnymax profile image
Ginnymax

Great news x

amt50 profile image
amt50

Thats good news I was taking 3 x 250g a day but it made no difference now on 5 x 250g a day for next 4 months to see if I respond.

Lcagar63 profile image
Lcagar63 in reply to amt50

Hopefully you will respond to a higher dose. Let us know the outcome in 4 months.

amt50 profile image
amt50 in reply to Lcagar63

Will do, thank you

Mrsfancypants profile image
Mrsfancypants

Fabulous. I had my first dose this morning. It makes you feel a bit weird , and tastes hideous x

Hils67 profile image
Hils67

Excellent news ...I've had similar results. Does make me feel very lucky. Hope you stay well x

Jlruggie profile image
Jlruggie

Good news, congratulations!

Jlruggie

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