Finally! Some good news.

[Ktltel]

Hello PBC family,

I was diagnosed with PBC last year in Oct. Like many of us, I was scared and stressed out with the news of my new chronic disease. To make matters worse I didn't tolerate the URSO. I got super sick on it and they took me off of it after 3 weeks and a loss of 12 lbs. So.... the months that followed were filled with Xanax, naturpaths, blood tests, GI appts, supplements, and a super restrictive auto immune anti inflammatory diet (which I'm still on).

Early in February this year I saw a hepatologist (waited 3 months for that appt.) who wanted me to give URSO another try. I would start at 1/2 the recommended dose for my weight and s l o w l y ease up to the full dosage. I waited a little over a month to give it a try again. I've been having monthly blood draws to keep track of my liver numbers. Well, I'm happy to report that I'm tolerating the lower dose URSO this time. ALSO.... I've lost enough weight in the last 6 months to stay at a lower dose!!!! (Yay) AND... got my blood work back from my latest draw.....

"All my numbers are down!"

I Just had to share this. I haven't had good news for a while. I forgot what it was like to just feel somewhat normal....

That's my boy Brodie!

Stella Dx 10/10/16 early stage PBC

[Hidden]

This is great news for you. I love your photo

[jemlola]

Hi kitltel

Thanks for sharing this, so nice to hear your good news. Look after yourself and get back to enjoying life. Take care and stay well. xx

[Ktltel in reply to jemlola]

Thank you. The joy is short but sweet. So many here under much stress. I totally understand it too. All of us have our ups and downs. Prayers for us all. ❤

[Caraway]

Oh that's fantastic Stella! Brodie looks chuffed too! What a lovely photo!

I was wondering - if someone doesn't tolerate the Urso - how soon does that manifest itself? Is it an almost immediate reaction from the very first pill and every time a pill is taken or a slow build-up of intolerance and then a bad reaction...? I just wondered as I've just only started taking it yesterday.

Oh and the anti inflammatory diet sounds interesting - is it a diet tailored to you specifically or did you find it online somewhere?

Thanks and again - well done!

[Ktltel in reply to Caraway]

Caraway,

It's true... I maybe jumping for joy too soon being that it's just one week back on the URSO. The first time I was sick already with gastritis so, when I started the URSO I didn't know it was the drug making me sick or the gastritis. I couldn't eat. Yet I was taking the URSO. Not good. It really messed up my already sick stomach.

Yes the auto immune anti inflammatory diet is tailored to my specific allergies but, most anti inflammatory diets have ones cut out the following

Dairy, sugar, salt, wheat, and gluten. Natural sugars are OK.

I drink bone broth for leaky gut. Once a day first thing. Google auto immune diet, or anti inflammatory diet. That will give you an idea.

[Caraway in reply to Ktltel]

I hope your stomach is better now? I will google the diets, thank you!

[Ktltel in reply to Caraway]

Thanks, yes the gastritis is how they even found the PBC. Through blood tests. Been over the stomach issues for a couple months now. That's why they had me restart the URSO. I'm hoping and praying I keep tolerating it. Just remember to take it with food. 👍

[emerich in reply to Caraway]

Hi Caraway, I took urso for 7 days with no problems, then massive allergic reaction overnight. X

[Ktltel in reply to emerich]

Emerich, How are you doing? Any changes since diagnosis?

[emerich in reply to Ktltel]

Hi Stella

I'm good thanks, not much change really, maybe more tired days, but don't sleep that we'll so might just be that. Annual check up soon so fingers x'd 😊. Hope you're feeling well today.x

[Ktltel in reply to emerich]

I can't complain. I see my naturopath tomorrow. Seem like if it's not one thing it's another. I've had this weird joint pain going on. It seems to travel. First one knee then my wrists, then neck and jaw pain,.... Strange. Sometimes they all hurt. Today it's jaw and knees! Lol

Glad to hear you're doing OK. I remembered you can't take URSO. Have you looked into the new drug? Okaliva I think it's called.

[emerich in reply to Ktltel]

I have my annual check up soon so I'll see what he says. If nothings changed bloods wise I'm not really keen on trying it. It seems a common side effect with it is itching . Also I'm a bit nervous of an allergic reaction as I think it must be similar base to urso?

[Ktltel in reply to emerich]

Right. Here's praying you stay asymptomatic

[emerich]

So pleased to hear your good news Stella. X

[Ktltel in reply to emerich]

Thanks.... Here's hoping it continues. 👍

[butterflyEi]

Hi Ktltel

Lovely to read your post, glad you have good news. Wonderful photo.

best wishes

[Sylvia1968]

Brill news xx

[Skypony]

Oh Ktltel that's wonderful news!

And your gorgeous photo illustrates how pets can be one of our resources!

[debim]

This is awesome...Thanks for sharing...may you continue to receive goods news and embrace your new "normal"...love your photo.

[Ktltel in reply to debim]

Thank you. Mr. Brodie resists being hugged. Lol

[Angel_b]

Fantastic news!

[Ktltel in reply to Angel_b]

Thank you! Here's hoping it keeps up.

[Janeway]

Great news! so happy for u love the photo x

[Eppy]

great news

[gwillistexas]

that’s great! Glad you are doing well. 😊