Vitamins A D and K: Does anyone with PBC take... - PBC Foundation

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Vitamins A D and K

Sissymcc profile image
13 Replies

Does anyone with PBC take Vitamins . I

A, D and K? I read that we will become deficient in these vitamins. I also take calcium and omega 3's and a baby aspirin

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Sissymcc
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13 Replies
dianekjs profile image
dianekjs

Most people shouldn't supplement vitamin A, as deficiency is uncommon and it's easier to overdose on it. Many people DO tend to be deficient or insufficient in vitamin D, however, particularly those of us with autoimmune conditions, so supplementation is usually recommended. You need to have a serum vitamin D level checked and see where you stand (easy blood test). If low or even in the low half of the normal reference range you can easily supplement with vitamin D3. Most people find they will need to take 5,000 IU/day to get and keep their blood level in the optimal range. I have to take 10,000 IU/day to keep my serum level at 70 or above, which is where my doctors want it. Vitamin D2 is not as well absorbed, so D3 is what you want. It is fairly difficult to overdose on vitamin D, with serum levels up to 100 and somewhat above still considered fine. However, at very high and prolonged doses it is possible, which is the main reason vitamin K is sometimes recommended to take at the same time. I used to take K to protect against any possible D toxicity but no longer do. I think the benefit is small, and I stay on top of my lab work. Be sure to check your serum D at least a couple of times/year if you decide to supplement as it will help you figure out if you are taking the needed amount. Optimal vitamin D levels help health status on many levels, so is definitely worth making sure you're where you need to be. Good luck!

* I should disclose that I do not have PBC, but am being watched closely in case I develop it, since I am positive for AMA (and numerous other autoantibodies).

JaneIng profile image
JaneIng in reply todianekjs

I am on the same boat as you Dianekjs. I take D3, B complex, Omega 3, Zinc, E and selenium.

Monitoring AMA, liver enzyme, CA19-9, amylase and Lipase.

dianekjs profile image
dianekjs in reply toJaneIng

My liver enzymes and a biopsy were completely normal, but AMA has persisted to show up solidly positive. Sometimes it can take many years to develop clinical signs (ticking time bomb), but often it never manifests as disease. Fingers crossed for us both!

Shulsey profile image
Shulsey

My GI & university heptologist requested I take a multivitamin daily with the prescribed vitamin D 50000 units weekly.

gwillistexas profile image
gwillistexas in reply toShulsey

My GI said ok to continue vit d, e & garlic while being on Oclavia. And I'm so proud to say NO ITCH so far😀

gwillistexas profile image
gwillistexas

I take E, D & garlic.

gwillistexas profile image
gwillistexas

And I have read K is good idea. I'll check with my GI next visit

LindyRich profile image
LindyRich in reply togwillistexas

I have read that too. Apparently Vit D gets the calcium out of food and into the bloodstream then k2 puts it in the bones. Worth a read up?

LindyRich profile image
LindyRich in reply toLindyRich

That is K2 i read about not K1

teddybear7 profile image
teddybear7

I take d & they're going to check a & k soon

Smfariman6060 profile image
Smfariman6060

Hi

I take D3,1000Iu daily and E and zinc.

with respect

Sachin1234 profile image
Sachin1234

You should get vit A and k from food like green leafy vegs, liver, sweet potato, and fruits unless you have chorns disease, celiac disease or any diseases that interferes gut absorption.. k supplement can be toxic...Please, take a dr advise before you start k supplement!!!

I take b12, d3(8000ui) a day, and b6 every other day Rest I try to get it from food!

LindaVillanova profile image
LindaVillanova

B12 and D

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