Hi I am new to this.Wondering if anyone can advise me on Drs. who treat GAVE. for my husband.

[franny1]

He has GAVE (watermelon stomach). He is having transfusions every 2-3 months now, used to be 6 months. Also has laser once a year which does not do anything for him. We live on the mid North Coast NSW but we will go anywhere if we can get a Dr who specialises in this area. I also want to know if there is something else that is causing this. The Drs. here do not seem to know much and instead of researching they just keep giving transfusions.

I have heard of a treatment in the US called CRYOTHERAPY which supposed to work and stops or slows the bleeding. Does anyone know of this being done here in Australia.

Thanks

Franny1

[Hidden]

Hello franny1.

As far as I understand, cryotherapy is terminology for freezing and know here in England where I am it is available for ridding warts on fingers, etc. but the liquid nitrogen used here is externally sonot sure internally.

That's all I know as I've never heard of GAVE.

[franny1 in reply to Hidden]

Watermelon stomach (GAVE) is bleeding in the stomach. There is a Dr is the US that does cryotherapy for watermelon stomach. HE had a video on his website showing what he does.

Thank for your reply.

Franny1

[Hidden]

Watermelon stomach is quite common in one of the conditions i have called scleroderma. Has he had an autoimmune profile done?

[franny1 in reply to Hidden]

Dear Inkedup

No he hasn't. What is an autoimmune. Who does it. The gastroenterologist or blood test, as we will enquire. to have it done.

Thanks

Franny1

[Hidden]

Autoimmune profile is a simple blood test that can show up autoimmune conditions that someone might have. It doesnt necessarily mean a diagnosis, just an indicator. For example most people with PBC have anti mitochondrial antibody, people with scleroderma have anti centromere antibody etc. These antibodies indicate that the immune system is turning on the person's body.

[franny1 in reply to Hidden]

Thank you very much for this info. i will make sure he has this at his next blood test