Hello everyone. For the newbies, I was diagnosed with PBC in March, got my stage in May, Stage 2. I have been on Urso now for a month now and have been paying more attention to the posts about those that the meds didn't work for. I am a person of faith, and I definitely rely on God for my dailing strength and mental optimism. But the looming thoughts, the ones that tell say, "What if urso doesn't work for you? What if you are one of those that go to cirrhosis quickly?" " what if you can't get a transplant?" What if, what if, what if. I guess I don't really need any advice as much as just some support. I still work a 40 hour week, volunteer at my church, and take care of my aging father and aging aunt (not day to day caregiver, just taking care of finances and emotional support). I'm 45 years old. I am not old enough to feel like I do some days. Will I ever wake up a morning and not feel like something is hanging over my head? I know my response to this is a choice and I know that I can do so much with this. But its still early days for me and I am not sure what is going to happen, nor have I come to complete peace with what is happening. I'm not depressed today, not really. Just, wow. Is this what the rest of my life is going to be? For the most part I am healthy. I get tired easily, but I can still push through. I just would like to know how much of this is PBC and how much of it is my attitude.
Also, did your liver still have pains, even on Urso? Mine went away, but it seems on my period and right after it hurts me. I assume since clotting factor is made in the liver, that when you are on your period, it has to work overtime.
Thanks for your thoughts and support.