I had a very bad condition with nerve vibrations making me very afraid, no energy (completely drained), feet pain, muscle pain, joints pain, nerve pain, warm/burning eyes, bitterness/metallic taste in mouth, brain fog and so on. Doctors neglected everything and I stressed to test my blood and found very low vitamin D (4.1 while range is 30 to 70) and below range B12 (183 while range is 197 to 729). Doctors in Belgium treated me with cynocobalamin tablets and it was of no use. I decided to travel to home (India) to get more aggressive treatment and here doctor gave me cynocobalamin 1000 mcg injection every alternate day for 2 weeks and then every week for a month and then every 15 days for a month and every month for rest of the year. After 3rd injection I improvement was very clear and I felt like getting the life back. After 5th injection I was almost normal in terms of energy and some pain was left in feet. But when 2 weeks completed and I didn't get injection till 3 days, my condition started getting bad and I took the first weekly injection after 5 days instead of 7 days. I felt better again, but started feeling awful again after 4 days. It's like my body expects the injection. This time I decided to go through this phase and complete 7 days. After 5th day without injection I started feeling normal again. I learnt that instead of jumping from alternate days to directly 1 week wasn't the expectation of my body and similarly not from weekly to 15 days. Therefore I decided to increase the gap gradually and support it with oral tablets. On December 1st my B12 was 183 and D was 4.1. After taking oral supplementation, on 15th December, B12 was 270 and D was 30. I took oral supplementation of B12 till December 24th and then started taking injections. I stopped the Vitamin D supplement on 8th Jan after taking total of 470000 IUs. I also had enough sun exposer in India during this period. I returned to less sun exposer (Belgium) on 11th Jan. I took total 9 injections of cynocobalamin (each 1000 mcg) till 16th Jan. And had the next blood test after 10 days on 26th Jan (I took oral B12 sublingual mythylcobalamin 1000 mcg daily from 19th jan to 24th jan). On 26th Jan my B12 was 910 and D was 27. My first and last blood test was done in same lab in Belgium and middle one was done in a different lab in India. After last test I started Vitamin D supplementation of 25000 IU twice a week and also returned to India for better sun on5th Feb. Now on 17th Feb when I have also started reducing my oral supplementation of B12 for last 10 days, I started feeling some of the symptoms little more (more pain in feet and wrist, burning sensation in eyes and little tired). Is it normal? Am I right on recovery path? Is it vitamin B12 or D which is creating more problems? I can say I'm definitely much better than how I was in december, but I had better days in between. I don't feel sick anymore, but not fit also. Any suggestions or any experience sharing? If I still continue injections, I would feel better but I fear myB12 will be too high.
My haemoglobin used to be above 15 (16.9 in June 2017). Which came down during this phase:
December 1st - 15.8
December 15th - 14.7
January 10th - 13.7
January 26th - 14.6
Folate was also in the range (earlier towards lower side, later in the middle of the range because my b12 tablets had folate also)
Iron and Ferretine were also in the range initially, Iron become high and Ferretine went low after taking tablets for 10 days on 15th Decrmber. Both become normal later when tested on 26th Jan.
Looking at my results for Two months, my doctor said, I don't have symptoms of anemia and saod my deficuency is only because I'm a vegetarian ( but I drink milk and eat curd although I drank less milk for a while). But my doctor didn't test for further causes.
My b12 level is going high but I feel bad if doctor makes my injection duration longer. Please help.