Nerves tingling and feet burning after loading dose

[Carlabear]

Hi, I've had my b12 loading dose. Started to feel a bit better after the first couple but the next lot has sent my neuropathy in my feet crazy!! Burning (worse than before) and tingling worse than ever!! Please tell me this is part of the recovery?? Thank you

[ajw1205]

I also had very bad burning in my feet and legs after my loading doses. It's calmed down a little now. Think it's just the nerves repairing themselves.

[Carlabear in reply to ajw1205]

Thank you, how long have you had the burning for?

[ajw1205 in reply to Carlabear]

I've had burning feet for at least 10 years, but it moved up into my lower legs the last couple of years. I've only been treated for 4 months, had 5 injections now.

[clivealive Forum Support]

Hi Carlabear

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery. Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

If you can get to see a doctor please also ask him/her to check your Folate level as this and B12 help your iron to make red blood cells and to function properly in the body.

I am not a medically trained person but have had P.A. for 46 years and I wish you well.

[Carlabear]

Thank you so much, just wondering if people have had such symptoms worsen and then made a full recovery? I was diagnosed by a doctor.

[Foggyme Administrator]

Hi bluepettals2. Your question is buried in someone else's post and will only be seen by those reading this post, not the whole forum.

You'll get a better response if you ask the question in a new post of your own, which will be seen by all forum members.

👍

[Hidden]

I have had this problem Carlabear usually in an evening when sitting relaxing. It really can be a damned nuisance and very uncomfortable. There are a couple of things I have found to be very effective at relieving the problem, temporarily, and they are firstly a couple of paracetamol tablets and soaking my feet in a bowl of hot water. The water treatment is very comforting and I have found the burning and tingling sensation goes as soon as I put my feet in the water. I have a jug of hot water to top up and warm it up as it cools. 15 minutes is usually plenty. Then I just put my feet onto a laid out towel and let them dry naturally.

Even if it doesn't solve the problem it does make me feel better for a while.

[fbirder]

When I was first diagnosed with PA I had very mild neuropathy. As my treatment progressed it got a lot worse, bad enough so that I was referred to a neurologist.

It turned out my neuropathy had nothing at all to do with PA and the timing was purely coincidental - PA and Idiopathic Axonal Neuropathy both tend to develop later in life.

So I would recommend asking to see a neurologist. It probably is just the nerves repairing, but it might not be. No harm in being sure. Although it can take so long to get a neurologist appointment that it might have all fixed itself beforehand.

[KimberinUS]

Prior to B12 injections when I was B12 deficient my feet would burn occasionally. Once I started getting injections they would get so hot almost nightly but definitely five nights a week for the first 4 to 6 weeks. After that it calmed down. But I was having weekly injections.

You wrote that you have had five injections in 4 months. This makes me ask if you live in the United States where doctors tend to give monthly injections. If that's the case you can go and get B12 injections at a weight loss clinic on a weekly basis.

[Carlabear]

Thank you so much. I am self injecting now everyday so hopefully it will improve and I'm on the very long waiting list for a neurologist. Fingers crossed like you it calms down. That has reassured me so thank you