Just want to say hello! And hope your all well. I am needing some advice regarding my serum b12 and seeking appropriate treatment. To give you a brief background: my name is Louise, I am 22 years old and have been diagnosed with Hypothyroidism. Since the age of 8 years old, (and most likely before this from memory)I have been struggling with low energy, oversleeping and still feeling tired, depression and anxiety, racing thoughts, visual side hallcinations, muscle and joint pain in my legs during day and night, low blood pressure, very cold hands and feet, bouts of insomma, low concentration, anaemia,repeated urinary tract infections, urine incontience, repeated stomach upsets with diarrhoea, irregular periods extreme sensitivity to light and hair loss amongst others. I find that I cannot wake up in the mornings, I feel exhausted in the day and cannot sleep at night.
I had an emergency operation at 8 yrs old to remove my appendix and I developed septicaemia and gangrene in my appendix. I'm very lucky to be alive! I thought I would mention this as a member on the thryoid uk forum said that if nitrous oxide was used it would inactivated my b12.
My last blood test results were:
Serum b12: 227 (bottom scale 142)
Ferritin:35.7 (bottom scale 20)
(Sorry cant remember the rest)
I spoke to my doctor about these results in early September as i was told my blood tests were normal. I argued that my b12 and ferritin were low, but she said they were fine and intact she wouldn't treat my b12 if it got to 100 still. I felt overwhelmed by this so didnt argue with her but asked for iron tablets which she eventually gave.
Trouble is, I'm getting more and more unwell. I have a feeling I may have a b12 deficency. I have started taking jarrow b12 1000 sublinguals, floradix iron, vitamin D spray and b12 spray. However I'm struggling to take it as I'm so low in my energy and have such a crap memory i forget to take them. I also have little appetite at the moment, so it prevents me from taking the iron.
Anyway I have looked at guidelines on b12d.org about deficency markers and it looks as though I'm in the moderate deficency catogery. Does this mean that unless my b12 levels go below 200, I won't get treated? I really feel I need some treatment now as My neurological symptoms are getting worse
Ideally I would like to start a course of injection to help me get my energy back (it's so low at the moment) but not sure if I'm entitled to it.
anyway any advice would be greatly appreciated.