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Chronic Pancreatitis Support

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📣 Discussion Topic: What Songs or Music Help You Get Through Tough Days?

Music can be a powerful tool when you're going through pain, exhaustion, or just feeling overwhelmed. Whether it’s a song that lifts your spirits, helps you...

Music can be a powerful tool when you're going through pain, exhaustion, or just...

Olivia_MC

Administrator•10 hours ago

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Your questions, answered: Managing CP & EPI

Living with Chronic Pancreatitis (CP) and Exocrine Pancreatic Insufficiency (EPI) can be challenging, but understanding the right diagnostic tests, treatment...

Living with Chronic Pancreatitis (CP) and Exocrine Pancreatic Insufficiency (EPI...

ChronicPancAdmin

Administrator•7 days ago

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Thank Heavens for PERT etc....

My life has been transformed recently. In 1993 I was was losing weight as all food shot through and smelling like a dung-heap I was exhausted and the...

My life has been transformed recently. In 1993 I was was losing weight as all f...

quanglewangle

•8 days ago

2 Replies

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MRCP with secretin.

Hi! Where is mrcp research conducted with secretin?

Tatush

•8 days ago

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CP Revenge

Just a short word on Chronic Pancreatitis and how it never leaves you. In previous posts I’ve stated how I was controlling cp and it not controlling me as it...

Just a short word on Chronic Pancreatitis and how it never leaves you. In previo...

Howimportant

•9 days ago

7 Replies

Whipple surgery

I'm hearing alot about whipple surgery, has anyone had it ? And what was outcome? Will it make chronic pancreatitis better?

I'm hearing alot about whipple surgery, has anyone had it ? And what was outcome...

Smiley316

•17 days ago

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Howimportant

If I felt my sugar was low I would have 6 glucose jelly beans, I wouldn’t take any creon forte, now I will take a 25000 creon (may sound like overkill and...

If I felt my sugar was low I would have 6 glucose jelly beans, I wouldn’t take a...

Howimportant

•20 days ago

2 Replies

Howimportant

Just an add on from previous post the 2500 creon per 2kg of your weight the British professor suggested in his paper he also said to adjust accordingly. As you...

Just an add on from previous post the 2500 creon per 2kg of your weight the Brit...

Howimportant

•21 days ago

3 Replies

How do I live a life as normal as possible?

When I was 12 I had my entire bowel removed and had a pouch, then 3 years later, I had a reversal, so I have always suffered with stomach problems. I got...

When I was 12 I had my entire bowel removed and had a pouch, then 3 years later,...

Bluelabell

•26 days ago

1 Reply

High Triglycerides - An Opportunity to Share Your Experience

Hi Chronic Pancreatitis Support Group! We wanted to highlight an opportunity from Ionis for those who have been diagnosed with severely high triglycerides...

Hi Chronic Pancreatitis Support Group! We wanted to highlight an opportunity f...

Olivia_MC

Administrator•1 month ago

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Newly diagnosed with Chronic Pancreatitis

I would like to learn more about this diagnosis and management.

Welsh1702

•1 month ago

8 Replies

Hello friends

So I'm not even 40 yet and I sometimes catch myself feeling like there's no way I can handle this cp pain some days. I'm 6 years into this disease and I tried...

So I'm not even 40 yet and I sometimes catch myself feeling like there's no way ...

Newthaniel88

•1 month ago

14 Replies

Hi has anyone ever tried Soursop pills or leaves as an alternative treatment for cancer? I am asking for a friend here.

Hi has anyone ever tried Soursop pills or leaves. I am asking for a friend here who has colon cancer (treated with chemotherapy) which emigrated first to liver...

Hi has anyone ever tried Soursop pills or leaves. I am asking for a friend here ...

Charlie_P

•1 month ago

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Diabetes and chronic pancreatitis

I was diagnosed with chronic pancreatitis a couple years ago. I was started on PERT. Just recently, last month my GI doctor told me to get my hemoglobin A1C...

I was diagnosed with chronic pancreatitis a couple years ago. I was started on P...

Chronicalle

•2 months ago

4 Replies

Help with Creon

Hello everyone! I have recently been diagnosed with EPI. No help with how to deal with it beyond take your Creon. They started me slow 12,000 units and now...

Hello everyone! I have recently been diagnosed with EPI. No help with how to dea...

Gatorgirl8

•2 months ago

15 Replies

EPI with no underlying cause

Hello everyone. Is there anyone here that has been diagnosed with EPI but no underlying cause has been established? I have been doing all sorts of testing but...

Hello everyone. Is there anyone here that has been diagnosed with EPI but no und...

Charlie_P

•2 months ago

31 Replies

epigastric pain

Does anyone else get hit with intense pain in the epigastric region sometimes when they change positions in bed at night? Sometimes I just simply roll over...

Does anyone else get hit with intense pain in the epigastric region sometimes w...

Beach_Gal

•2 months ago

2 Replies

Share your stories with Mission:Cure!

Hi everyone! My name is Hannah and I’m a communications associate at Mission:Cure. We’re working on an op-ed about medical gaslighting by healthcare providers...

Hi everyone! My name is Hannah and I’m a communications associate at Mission:Cur...

Hannah_MC

•2 months ago

6 Replies

Mild chronic pancreatitis

I would like to ask if anyone has mild chronic pancreatitis? My Dr does not really say much about it other than take creon, and low fat diet, no red meat, no...

I would like to ask if anyone has mild chronic pancreatitis? My Dr does not real...

Smiley316

•2 months ago

9 Replies

Diagnosed with EPI

Hi I'm Debbie from Birmingham England But have moved to torquay in the last year I've had 2 stage 4 cancers cervical 16 years ago and then 4 years ago it...

Hi I'm Debbie from Birmingham England But have moved to torquay in the last year...

Moveitorlose

•2 months ago

2 Replies

Creon

Hi just wondering if there is anyone who has being diagnosed with EPI I've been given creon to take but do I have to have a special diet No advice has been...

Hi just wondering if there is anyone who has being diagnosed with EPI I've been...

Moveitorlose

•2 months ago

9 Replies

Creon 25000, increased does + IBS and constipation

I saw my dietitian this week. She advised that I was taking too little Creon. I have upped the dose as advised but I also have a long history of IBS and every...

I saw my dietitian this week. She advised that I was taking too little Creon. I ...

Nomojo56

•3 months ago

1 Reply

With EPI and Zenpep side effects

Have you experienced frequent urination while on Zenpep? And does having EPI (and also taking Zenpep) produce excessive flatulence? I’m so gassy especially...

Have you experienced frequent urination while on Zenpep? And does having EPI (a...

Epiguy

•3 months ago

7 Replies

📣 Make Your Voice Heard

We want to hear from YOU as we kick off 2025! We’d love for our amazing patient and caregiver community to take a quick survey to help us better understand...

We want to hear from YOU as we kick off 2025! We’d love for our amazing patient...

Olivia_MC

Administrator•3 months ago

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Creon

does anyone have itching and rash when using creon I was fine for a bit but lately I'm getting very itchy and I get a rash, and red spots on legs that look...

does anyone have itching and rash when using creon I was fine for a bit but late...

Smiley316

•3 months ago

10 Replies

Looking for support group

I have had UC since early 2022 and was recently diagnosed with EPI. I am looking for an appropriate support group for help in managing my diet while using...

I have had UC since early 2022 and was recently diagnosed with EPI. I am looking...

Bluespower

•3 months ago

5 Replies

Chronic Pancreatitis

Hi All I have been having issues with digestion for the last couple of months and went to my Gastro dr and she told me my pancreas is not working properly and...

Hi All I have been having issues with digestion for the last couple of months a...

Missufo

•3 months ago

2 Replies

Join Our Pancreatitis Wearables Research Study

Hi all, this is Olivia from Mission: Cure! We wanted to share a research opportunity with you. Our team is starting a new study with 4YouandMe using provided...

Hi all, this is Olivia from Mission: Cure! We wanted to share a research opport...

Olivia_MC

Administrator•3 months ago

4 Replies

pancreatitis

I’ve been diagnosed with chronic pancreatitis and I don’t know what the future will be like

I’ve been diagnosed with chronic pancreatitis and I don’t know what the future w...

33mark

•3 months ago

8 Replies

advice from managing chronic pancreatitis

Hi, my name is Rhonda, My journey trying to find out what was wrong with me was 5 to 6 months before last year 2023 Christmas Day I was rushed to the ER....

Hi, my name is Rhonda, My journey trying to find out what was wrong with me wa...

Hidden

•3 months ago

1 Reply

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📣 Make Your Voice Heard

📣 Discussion Topic: What advice would you give to someone n...

Your questions, answered! Learn how to manage your symptoms ...

Free Webinar: Nutrition for Chronic Pancreatitis

Welcome to the Meditation and Chronic Pain Webinar with Chri...

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Posts - Chronic Pancreatitis Support | HealthUnlocked

Chronic Pancreatitis Support

📣 Discussion Topic: What Songs or Music Help You Get Through Tough Days?

Your questions, answered: Managing CP & EPI

Thank Heavens for PERT etc....

MRCP with secretin.

CP Revenge

Whipple surgery

Howimportant

Howimportant

How do I live a life as normal as possible?

High Triglycerides - An Opportunity to Share Your Experience

Newly diagnosed with Chronic Pancreatitis

Hello friends

Hi has anyone ever tried Soursop pills or leaves as an alternative treatment for cancer? I am asking for a friend here.

Diabetes and chronic pancreatitis

Help with Creon

EPI with no underlying cause

epigastric pain

Share your stories with Mission:Cure!

Mild chronic pancreatitis

Diagnosed with EPI

Creon

Creon 25000, increased does + IBS and constipation

With EPI and Zenpep side effects

📣 Make Your Voice Heard

Creon

Looking for support group

Chronic Pancreatitis

Join Our Pancreatitis Wearables Research Study

pancreatitis

advice from managing chronic pancreatitis

Search posts

Pinned Posts

Latest poll

We are so glad to have you here. What is your top reason for joining this community?

Topics

Archive