How do I live a life as normal as pos... - Chronic Pancreati...

Chronic Pancreatitis Support

1,093 members379 posts

How do I live a life as normal as possible?

Bluelabell profile image
1 Reply

When I was 12 I had my entire bowel removed and had a pouch, then 3 years later, I had a reversal, so I have always suffered with stomach problems. I got admitted to hospital with pancreatitis about 5 years ago, but never got anything about my condition explained to me. I now have chronic pancreatitis and epi. I saw a dietician and got told I should cut down on fatty foods, leafy green veg, pulses, red meat, processed food and avoid alcohol. Some of these foods I have to avoid because of my ulcerative colitis, but I feel it can't be good cutting out so many food groups, especially as absorption is an issue. I was thinking about taking a Zoe test. Has anyone done this and is it worth it? Also, I am really struggling to live a full life. I work in the construction industry, and as a woman in this environment, I feel I have to put on a brave face at work. I've had so much time off sick and have read that this condition will shorten my life, so is there even any point in re training? How long can we live with this condition? I have cut myself off from my friends as they like to go out for meals and drinks. This has made me feel isolated and lonely. I'm also not getting on with creon as it makes me feel sick and gives me pain after eating. Does anyone have any ideas as to how to live a more normal life with minimal pain, or is this it? I have really been left in the dark by thw medical profession and don't know what to believe on the internet.

Written by
Bluelabell profile image
Bluelabell
To view profiles and participate in discussions please or .
1 Reply
Marktime profile image
Marktime

hi, first, did they tell you that timing is everything with Creon, It's best to have everything you're going to eat ready or even in front of you, then take the medicine and start eating, If it takes you more than 20 minutes then you should take another pill or two, depending on fat and protein remaining. I would recommend if you feel like you're having a lot of digestion issues try to eat more of whole food like meat potatoes vegetables, Less junk food like with fat and sugar combined especially. I find that my digestion lags, so if I ate something and didn't take enough Creon or eat wrong, I'll I'll feel it then, but I'll also feel it for days and the same way getting better, takes days. I don't know, I hope that makes sense. if you have any questions feel free to message me

Not what you're looking for?

You may also like...

Chronic pancreatitis sufferer

I am new to this group. I’ve suffered from pancreatitis for over 30 years. Now I have an atrophic...

Advise for On-going pancreatitis

I’m a young 26 year that first experienced my first pancreatitis at 16. Now chronic pancreatitis- I...
Gabriel5000 profile image

Pancreatitis flare ups

Hi all. Where do a begin!! I was admitted into hospital last year in November for 2 weeks due to...
JosieH90 profile image

📣 Discussion Topic: How has your relationship with friends or family changed since your diagnosis?

Hi, everyone 👋 I hope this week – and the weather – has treated you well! (It's HOT here in...
Skye_MC profile image
Ambassador

Concern for a friend

I have a friend who drinks a considerable amount, bottle of vodka a day typically. He has developed...
Chris-harris profile image

Moderation team

See all
Olivia_MC profile image
Olivia_MCAdministrator
Isabel_MC profile image
Isabel_MCAdministrator
Shruthi_MC profile image
Shruthi_MCAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.