Just a short word on Chronic Pancreatitis and how it never leaves you. In previous posts I’ve stated how I was controlling cp and it not controlling me as it had been around 4 months since my last flare up. The last 5 days have reminded me that if you have cp you are stuck with it for life. I’ve had a rough 5 days including a trip to hospital which I rarely have done. In hospital I was pumped with morphine and when that didn’t stop the pain I felt as though my pancreas was on its last legs because I think one day this could happen to me as I do only have 1/3 pancreas left and as we know once you hit 40 the pancreas shrinks so I conclude with me only having part pancreas I may end up with very little pancreas at all. However in hospital when the morphine didn’t work I was given a needle in the arm with an anti inflammatory drug(wish I had have asked for the name of the drug) because within 1/2 an hour pain gone and out of hospital next morning. So finishing up I still 100% believe the correct amount of Creon Forte(2500 creon to 2kg of your weight and higher if needed) has helped me immensely and I honestly think I wouldn’t be alive today if it wasn’t for Creon Forte and now the anti inflammatory needle if you have to go to hospital is a life changer or at least it was for me.
CP Revenge: Just a short word on... - Chronic Pancreati...
CP Revenge
thank you so much for letting us know that! If someone who lives with chronic pain and now a dead pancreas, I appreciate any and all information that people pass on. I’m sorry you were in that much pain. That had to be really hard. So I’m happy that you finally got that shot of inflammatory medication and it helped.
Thanks Gatorgirl8 my pancreas isn’t exactly dead but definitely struggling. I’m a lot better than I was 2.5 years ago but cp has a way of reminding you it’s always there. I know I will keep getting flare ups however I can cope with that if it’s 3 or 4 times a year when it was every 2 to 4 weeks. I was 83kg and dropped to 45kg but now 63kg so much better now. If you have any questions feel free to ask.
Thank you. You have already helped me with knowledge of Creon dosage.
I’m glad to hear that you have recovered from the painful episode of CP. I have EPI of no known cause and have never had pain. I realise that I am very lucky but anticipate that this may change. I should be most grateful if you would explain the dosage method . How much as per the number of 2kgs of weight . Is this per meal or day? please help me to understand.
Wishing better
It’s per meal however that is if you are eating something a bit fatty. You adjust it accordingly a low fat meal will be less. So I’m 60kg I will have about 100000 creon for a normal meal with some fat. For a piece of toast for example I will adjust to maybe 70000 creon and a snack handful of chips or peanuts whatever maybe 25000 creon and I have my creon 1 second before I eat it’s amazing stuff. You really can’t have too much creon it’s only pigs pancreas. For you not having pain you may find 25000 creon for main meal is enough and snacks etc 10000 but if you feel you aren’t digesting your food properly ie vomiting, diarrhoea, nausea etc adjust your creon up to 50000 and higher if things get worse. Creon has been the answer for me as until recently I hadn’t had a flare up for about 4 months and before that it was every 3 weeks I was really very ill for over 2 years but I feel back on track and no doubt flare ups will happen from time to time but for me if that’s only every 4 months or so I can live with that.
what is terrible is there are several potential cures but the find politicians want to hold the funding up so we have to sit here an suffer when there isn’t a a cure
I think half the problem is not enough people have cp compared to mnd, cancer and many of the other diseases out there so it doesn’t get the media exposure and funding like the other diseases. I’m 1 of 2 people with cp with my gastroenterologist which wouldn’t even be 1% of his patients so money won’t be spent on less than 1% of the population I’m afraid.
EPI with no underlying cause 
pain... not yet diagnosed.
Scans
dietary advice please
