Hello CP warriors! We had some new members join these last couple of weeks, so I thought it would be a good opportunity for us to share some advice with them. 😊
This week's discussion topic: What advice would you give to someone newly diagnosed with chronic pancreatitis?
Take a deep breath and try to relax. Everything about chronic pancreatitis takes time - time to get diagnosed, time to learn how to take prescriptions, time to figure out what foods you can eat, ... the list continues. The more positive you can stay the better.
The websites with the most up-to-date and helpful information are: Mission: Cure, The National Pancreas Foundation, and Ariel Precision Medicine. Otherwise, be careful of the internet because there is a lot of outdated information out there.
This is a difficult disease to manage, so it will not happen overnight. I've noticed every pancreas patient is a little different, so find out what works for you. I find it helpful to keep a food/symptom journal to help figure out what to eat.
Also, you are not alone. When you have questions, this is a good site to ask questions. I've found the feedback to be helpful and the administrators of this site are good at finding webinars with helpful information.
Anne
These are great tips! Thank you for sharing
thank you for your informative compassionate response
Super idea! I shall read all replies with interest as currently being tested for all sorts of feared conditions but my thought is autoimmune pancreatitis as I have another AI Disease, chronic pancreatitis as a result of that condition or gallbladder disease of some sorts. In any event I’m reducing all sugar fat and salt and have stopped all alcohol too.
Thank you for raising this. I was devastated to learn I had Pancreatitis, enzyme deficiency and especially two people I knew went on to develop cancer and passed away. I also live with Rhuemtoid arthritis and the stress has caused flare ups. Any support and information is always welcomed. Yet to see a Gastroenterologist but my GP is so supportive. The CT scan also detected Diverticulor disease so waiting for a Colonoscopy.
I recommend joining THIS GROUP 😉. It has been such an encouragement to me to know I am “not alone” and to be able to chat directly with others in the “same boat”. It helps to know that we do NOT all fit in the same box: our symptoms vary, treatment plans vary and yet there is HOPE for a lifestyle that keeps improving despite our symptoms. It is a huge help we pursue optimism and encourage one another when someone is down. Chin up. We can do this! We are all cheering for one another! Yes! 😊
Best of all -when we know Him as our personal Father, we have His loving Presence in our lives. This is my very absolute BEST recommendation to anyone who may be skeptical or cynical about faith in our Loving Creator God! 😊 He cares and He Carrie’s us in the most difficult challenges of life .
📣 Discussion Topic: How did you learn more about your pancreatitis diagnosis?
How do you deal with the stress and fear of having chronic pancreatitis?📣 Discussion Topic: What are your favorite pancreatitis-friendly snacks? (Plus, some recommendations!)📣 Discussion Topic: When you think about your current treatment, what would you say is missing or feels incomplete, if anything?📣 Discussion Topic: What helps you most during a flare?
