Posts - Chronic Pancreatitis Support | HealthUnlocked

Chronic Pancreatitis Support

1,092 members•379 posts

All posts for January 2025

EPI with no underlying cause

Hello everyone. Is there anyone here that has been diagnosed with EPI but no underlying cause has been established? I have been doing all sorts of testing but...

Hello everyone. Is there anyone here that has been diagnosed with EPI but no und...

•3 months ago

epigastric pain

Does anyone else get hit with intense pain in the epigastric region sometimes when they change positions in bed at night? Sometimes I just simply roll over...

Does anyone else get hit with intense pain in the epigastric region sometimes w...

•3 months ago

Share your stories with Mission:Cure!

Hi everyone! My name is Hannah and I’m a communications associate at Mission:Cure. We’re working on an op-ed about medical gaslighting by healthcare providers...

Hi everyone! My name is Hannah and I’m a communications associate at Mission:Cur...

•3 months ago

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Mild chronic pancreatitis

I would like to ask if anyone has mild chronic pancreatitis? My Dr does not really say much about it other than take creon, and low fat diet, no red meat, no...

I would like to ask if anyone has mild chronic pancreatitis? My Dr does not real...

•3 months ago

Diagnosed with EPI

Hi I'm Debbie from Birmingham England But have moved to torquay in the last year I've had 2 stage 4 cancers cervical 16 years ago and then 4 years ago it...

Hi I'm Debbie from Birmingham England But have moved to torquay in the last year...

•3 months ago

Creon

Hi just wondering if there is anyone who has being diagnosed with EPI I've been given creon to take but do I have to have a special diet No advice has been...

Hi just wondering if there is anyone who has being diagnosed with EPI I've been...

•3 months ago

Creon 25000, increased does + IBS and constipation

I saw my dietitian this week. She advised that I was taking too little Creon. I have upped the dose as advised but I also have a long history of IBS and every...

I saw my dietitian this week. She advised that I was taking too little Creon. I ...

•3 months ago

With EPI and Zenpep side effects

Have you experienced frequent urination while on Zenpep? And does having EPI (and also taking Zenpep) produce excessive flatulence? I’m so gassy especially...

Have you experienced frequent urination while on Zenpep? And does having EPI (a...

•3 months ago

📣 Make Your Voice Heard

We want to hear from YOU as we kick off 2025! We’d love for our amazing patient and caregiver community to take a quick survey to help us better understand...

We want to hear from YOU as we kick off 2025! We’d love for our amazing patient...

Administrator•3 months ago

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Creon

does anyone have itching and rash when using creon I was fine for a bit but lately I'm getting very itchy and I get a rash, and red spots on legs that look...

does anyone have itching and rash when using creon I was fine for a bit but late...

•3 months ago

Looking for support group

I have had UC since early 2022 and was recently diagnosed with EPI. I am looking for an appropriate support group for help in managing my diet while using...

I have had UC since early 2022 and was recently diagnosed with EPI. I am looking...

•3 months ago

Chronic Pancreatitis

Hi All I have been having issues with digestion for the last couple of months and went to my Gastro dr and she told me my pancreas is not working properly and...

Hi All I have been having issues with digestion for the last couple of months a...

•3 months ago

Join Our Pancreatitis Wearables Research Study

Hi all, this is Olivia from Mission: Cure! We wanted to share a research opportunity with you. Our team is starting a new study with 4YouandMe using provided...

Hi all, this is Olivia from Mission: Cure! We wanted to share a research opport...

Administrator•4 months ago

pancreatitis

I’ve been diagnosed with chronic pancreatitis and I don’t know what the future will be like

I’ve been diagnosed with chronic pancreatitis and I don’t know what the future w...

•4 months ago