Share your stories with Mission:Cure! - Chronic Pancreati...

Chronic Pancreatitis Support

1,050 members355 posts

Share your stories with Mission:Cure!

Hannah_MC profile image
2 Replies

Hi everyone! My name is Hannah and I’m a communications associate at Mission:Cure. We’re working on an op-ed about medical gaslighting by healthcare providers and its potentially dangerous ramifications. We were wondering if anybody in this group has experiences they’d like to share? Were your symptoms discounted? We want to highlight a different approach- outcome based incentives to cure chronic diseases. Let us know!

Written by
Hannah_MC profile image
Hannah_MC
To view profiles and participate in discussions please or .
2 Replies
Smiley316 profile image
Smiley316

I had nausea on and off for 3 yrs, no pain ever just nausea I told Dr they did not think anything of it they said maybe it was meds for osteoporosis that I was taking that make me feel that way, then 10 months ago I had more severe nausea and some pain they finally took me seriously ,and it was confirmed I had chronic pancreatitis, I wonder if it were investigated 3 yrs ago I probably wouldn't of had chronic pancreatitis and it could of been reversed.

33mark profile image
33mark

During a flare up I went to the emergency room telling them I have pancreatitis and I know what is happening. My heart beat was in the lower 40’s and my speech was slurred. They said I was having a stroke and my pain was a side effect of the stroke. They gave me fentanyl and fluids. The next morning they decided I didn’t have a stroke and I could go home. As I was packing up to leave my wife; out of curiosity asked the nurse my lipase level. She didn’t know so she looked. It was 1420. She talked to the doctor about it and he said it was nothing to worry about. It was from my “stroke “ event.

Not what you're looking for?

You may also like...

What was your experience with your pancreatitis diagnosis?

Hi everyone, I'm interested to know; when were you diagnosed and how long did it take for doctors...
MaddieHU profile image
HealthUnlocked

📣 Discussion Topic: Do you share your pancreatitis diagnosis with others?

Dealing with pancreatitis is a personal journey, and you get to decide how much you want to share...
Skye_MC profile image
Administrator

📣 Discussion Topic: How has your relationship with friends or family changed since your diagnosis?

Hi, everyone 👋 I hope this week – and the weather – has treated you well! (It's HOT here in...
Skye_MC profile image
Administrator

📣 Discussion Topic: When you think about your current treatment, what would you say is missing or feels incomplete, if anything?

Hi All 👋 I hope everyone is having a wonderful week! You may have seen this on our socials, but...
Skye_MC profile image
Administrator

Chronic pancreatitis with EPI

I have a question for anyone of you whom have been diagnosed with Autoimmune Pancreatitis. Did the...
Briana1 profile image

Moderation team

See all
Olivia_MC profile image
Olivia_MCAdministrator
Shruthi_MC profile image
Shruthi_MCAdministrator
ChronicPancAdmin profile image
ChronicPancAdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.