an immobile mess

[Horrorlover23]

Firstly let me apologise the the lengthy post my mood is rock bottom right now and I need a safe space to air everything! I should also note I'm in the UK so a lot of the medical services are very different than what I would get quite easily in the US . I have suffered with bouts of lower back and hip pain for as long as I can remember it would flare up if be on tablets and then would ease off in a week or so, but last week (10th) I woke up at 2am with the most horrific back pain like my hips had been completely locked and unable to move . Fast forward to today and I'm still exactly the same I just can't bare it any more I'm not getting the slightest bit of pain relieved from anything they are giving me: Naproxen 500 twice a day Diazepam 2mg 3 x a day (5 days only) Paracetamol Tramadol Robaxin 8 x a day

I should not this has been what they have tried I'm not taking this whole thing right now and nothing is even taking the edge off.

Thad an awful experience where I was stuck on the floor with no one to take me to hospital so had to call for an ambulance as the gp said he took 10 hours to arrive and insisted hospital couldn't help, he wouldn't transport me and it was "just back pain" I just have to be mobile as much as it hurts . I'm trying to be mobile as much as possible even if it mean screaming in against while I drag my feet along the floor.

I ended up in a&e last night as had an episode of bowel incontinence, after several checks they determined it was down to recent fistula surgery and not a nerve /back emergency . I left the er with 5 days of diazepam and more naproxen even though I said it doesn't do anything !! I'm at a point where I feel like I'm going crazy !! They gave me 2 doses of oral morphine in the waiting room and were like and you're still in pain? YES!! I'm not lying and not after drugs all I want is something to give me enough reliet that I can walk slowly and start to feel little parts of the day where I'm not in searing pain!

I should note I had an MRI in feb this year due to hip pain and it showed 3 bulging discs, dehydration of the discs, nerve impinge on 2 locations etc, but nothing ever happened with that they never followed up? Never even gave me my results I happened to stumble across them in my nhs app by mistake !

Sorry for the crazy ramblings I just feel like I'm losing my marbles now, surely something should give me some kind of relief from pain even the tinest bit 😞 I’m just at a loss of what to do now

[Bananas5]

There was a tine bot so long ago when Pethidine was given, usually oe injection imto the ntm, which relaxed the bofy completely. Tis gave nature breahing space.

Nowdays I don't think this is doe anymore. Like so many good drugd it was abused in the US and GB ran scared.

Fentanyl slow release is an old favourite and works well but does take a whie to kick in. Down side is they are licensed to run for 72 hrs before rplacing. Rarely do they give rlief that long...maybe 60 hrs

Oxycontin is another.

These ate very strong drugs and GPs and pain clinics are encouraged NOT to use these days. Stupid as they do work.

Do ask about them and never take no as an anser

x

[Batty1]

This isn’t a crazy rambling and it’s appalling that your doctor left you waiting on the floor for 10 hours refusing to send ambulance…. Wow you need a new doctor asap and you need to go see a doctor that specializes in backs. Hang in there!

[Virgil1]

Hello, tramadol loses its effectiveness after a while (usually within 3 years) but the body/mind still associates it with pain relief. I ended up with a full blown addiction which I only got out of after spending a month locked away in a rental cottage. It’s incredibly frustrating trying to convey back pain in an assertive way (had a c1,c2 fusion op 4 yrs ago and pain has been constant since). Not the best advice but I’ve found a cycle of stretching, intermittent bouts of excessive alcohol consumption and edibles help!! Like I said, not the best advice but all we can do is try whatever suits us individually. There are a lot of mental techniques to control all kinds of pain but they require certain levels of belief and extreme commitment, just remember to breathe. Good luck and take care 😊

[deejames in reply to Virgil1]

I became dependent on morphine then tapentadol and finally Fentanyl. I lost 2 years of my life becoming withdrawn, hysterical and needing greater doses with no real relief. They are in my mind useful drugs for short term relief but not for long term functioning. I now take CBD + CBC + very small doses of co- codamol. I have pain still but a decent active life and my friends and have found myself again.

Meditation is also part of the mix and gentle yoga to keep flexibility

It's a very hard road but for many it is possible to live without lots of those big bad boy pain medications

Dee

[Bananas5 in reply to deejames]

Is that really you Dee...I so hope so. Message me if you can

x

[deejames in reply to Bananas5]

It is indeed. I have forgotten how to send a private message though !

[Bananas5 in reply to deejames]

click on my nae and my profile comes upclicj on message...I just sent you one

x

[uggycat]

Have you had any antibiotics in case of infection i had bad pain which nothing took away even mst. in turned out to be slow septis.

[Imagine1]

I am so sorry that you are going through this horrendous time. It is disgusting how the NHS are treating you, but it doesn't surprise me, they are supposed to be the caring profession? I don't think so. Have you seen anyone in the pain management team yet? I have been waiting for 4 years to see someone and I have got an actual appointment this afternoon, which is a real shock. I need some sort of operation on my big toe joint, because I struggle to walk. This all happened because of the glorious NHS, NOT. I was left unable to walk through a broken foot/ankle and because I limp, it has affected my toe, they don't care and they never will. All they bother about is going on strike for more money, not for the patients which they are saying. How will they going on strike help us? sorry I am ranting now, I do know how you feel though. Take care. xx

[PainConcernHelpline Moderator Community Champion Pain Concern]

Dear Horrorlover23,

I am a forum moderator at Pain Concern and also have chronic pain.

I have been reading through your post and have put together some resources that I hope will be of some help to you.

painconcern.org.uk/product/...

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painconcern.org.uk/airing-p...

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Best wishes

Pain Concern

[Smilesalot]

My heart is breaking for you. I understand tho. I had a fall nearly 2 weeks ago. I have fibromyalgia copd diabetes mental health problems and poor mobility.I was unable to get myself back up. After 24 hrs my neighbour heard me calling for help.

An ambulance came. Fire brigade had to break in. They took me to hospital. I don't remember much of it but the pain.

I'm home now and my mobility is worse. But I'm doing my best to improve my situation.

Been told could take 2 yrs to improve the muscular atrophy .

I have a wonderful carer but it's mainly down to me.

Oh I forgot the sciatica bursitis and osteoporosis.

However the problem s you have sound so much more painful.

Please don't give !

Don't let them get away with not helping you.

With being a psychiatric patient I've been ignored.

Your Gp doesn't give confidence to me. I know the health service is struggling but surely you're a priority case like I was. I don't like your Doctor.

You need a close friend or maybe citizens advice bureau to give you heft to take to you appointment s.

My Carer comes to every appt I have. He's imposing looking and speaks posher than I do. He speaks with confidence and authority. But I haven't always had that support. I'm rolling my eyes now lol.

I wrote a lot. I'm so sorry😐.

I truly hope you get listened to.

Good luck sweetie

Huffy fluffer x