Advice please desperate!

[kat898]

Hi all, iv posted a few times, so we're now in June and iv had nerve pain since April, iv seen a physio, drs etc.

I'm waiting a call back for more medication this afternoon, because I have anxiety alot of times I get fobbed off from the proffessionals, thing is I have had pain down my arms and they feel really hard and can feel a lump on the right arm. My back went 2 days ago, I feel absolutely beside myself now. I keep getting fobbed off ana still.waiting for scan, how can I speed things along? Do I say anything in the phone to the receptionist about my arms? Anyone else experienced this?

Any help would be gratefully appreciated.

Kat.

[bantam12]

Many of us have been in pain for years with little help, its not always an easy problem to treat.

Maybe see a Chiropractor for advice, they are much better at diagnosing muscle and nerve pain, my monthly Chiro appts have kept me mobile for the last 20 years and she honestly is more help than any Dr has ever been.

[kat898 in reply to bantam12]

I keep getting new problems on top of the ones I already have surely the Dr should be able to give me a reason as to why I have the problems I do and investigate it more seems as I was ok before this. Iv seen a chiropractor twice atm it's not possible too due to recent surgery. Will go once I can though.

Kat.

[bantam12 in reply to kat898]

Oh if only Drs could give us a reason, I wish !

I have lost count of the times I've been told "nothing I can do for you" even after investigations. I have chronic pelvic pain and even the Gynae Consultants aren't interested in finding out why, once they rule out the obvious they give up.

[kat898 in reply to bantam12]

Do you not push for answers?

There is always a reason why something has happened to cause pain. How do you manage it? I feel absolutely deflated.

[bantam12 in reply to kat898]

There isn't "always" an obvious reason for pain, many times they just don't know what the cause is.

Believe me I know how to "push for answers" but they can't answer what they don't know and if all tests come back as normal then at some point they and we have to give up. Many many people have to live with chronic undiagnosed pain.

I hope you find the cause of your problems.

[kat898 in reply to bantam12]

That makes sense and it's terrible it's like that. Me too thank you for your replies.

Kat

[JRHT]

I agree with other posters, unfortunately there isn’t always an answer to the pains we live with. It took me a long time to realise that painful joints, stiff muscles limited mobility is part of who I am now and just accept it and. I now understand that anxiety plays a large part in how pain effects us. It’s impossible for anyone living with chronic pain to be the happy and cheerful all the time but accepting that some days are good and some not so good helps me. I do hope you get some relief from your pain and some answers soon if that is what you feel will help. Take care.

[kat898 in reply to JRHT]

Thank you for your reply X I'm just upset as I'm young and still want to do alot of things in life and feel like it's been taken away from me. Yes i am feeling sorry for myself still.

Kat.

[JRHT in reply to kat898]

Hi Kat, of course you are allowed to feel sorry and upset for yourself sometimes, I do. I then try giving myself a talking to and find something to divert myself .

I don’t know what your pain diagnosis is but mine, although I’m never completely without it can flare up for months and then calm down so I can do a lot more. Have any of your doctors suggested a Pain Management course? I was very sceptical when it was suggested to me, years ago. However, I did complete one and although it wasn’t altogether successful it did help me understand the causes of pain and some of the techniques we were taught are useful. Best Wishes .

[Fibronew]

Hi Kat, I have had nerve pain for the last 30 years, for a long time nothing worked, I was then trialed on Phentanyl patches, these worked for me, after all this time, i developed a new dreadful pain in my hip, i was seen by a Rhuematologist for the first time in too long to remember the last time, I was referred by my pain clinic, you can imagin my surprise when I was diagnosed with something called Fibromyalgia, i am now also taking Pregabalin, but its early days, i am still taking my phentanyl patches, only time will tell, I hve good days and bad days, I am 67 years old, now and this pain has blighted my life, spending time playing with my kids who are now all grown up with kids of their own. I have gone through Cancer and a stroke, but I will not give in, so keep your chin up if you can, I know its easy to say, but it is the only thing that gets me through, I just will not let it beat me. Good luck.

[kat898 in reply to Fibronew]

Hi fibronew, thank you 🧡 you have been through so much you still have that fighting spirit. I have just completed 5 sessions of massages, it was costly but does come in time for the pain. I have had to sort of fight for the drs to help, k had an MRI 2 weeks ago just waiting on the result now. Yes it does take over I feel bad for my son he's only 8. We use to be so active. I will try and remain for positive. Kat.