Dysautonomia help my autonomous nervous system is rogue

[Outsidergal96]

Okay after 11 years of not being diagnosed or taken seriously I have finally been diagnosed with small fiber and peripheral neuropathy every thing is affected but doc after doc seems not to know why or what to do. I’m prescribed methadone for the pain after having no choice but to abuse OxyContin and Percocet to function and of course now I’ve also been diagnosed with gastroparesis and achalasia,trouble swallowing and I get the cause is the methadone. I want to scream I suffered for four years with the pain exhaustion excessive sweating constipation swollen neck without taking anything but prednisone until I couldn’t take it anymore the medication helps it doesn’t cause it, I know I have underlying conditions and I just can’t find doctors that see the seriousness of my situation I was a licensed therapist and now I’m on disability I worked so hard for my credentials and now I cannot work or get help finding out the causes of this I also have dysautonomia anyone have this? What do you do for it? Please please help me

[rabbits65]

Oh dear I’m so sorry you are suffering so much, I do feel for you and sincerely hope that one day you will get the answers your badly looking for .

[Evonne02]

I sincerely feel for you. I'm 8 years down the line crying and screaming in pain constantly. I cannot look after myself or my tiny flat. All I've got so far is being told I have osteoarthritis in both hands and at the base of my spine. I take the usual cheap painkillers that don't work and cause continuous constipation and severe stomach pains.Have you requested to have pain patches? Have you been offered Hydrotherapy or a body massage via a specialist physiotherapist? Can't think of anything else just now. Look.into therapies offered on the NHS. Part of our problem is the reduction or removal of services and therapies from the NHS.