Hi everyone. I am having an epidural spinal steroid injection into my lower back on Saturday at the hospital. Really scared and not sure what to expect and I am not having a sedative so I am hoping it is not too painful. Somebody please put my mind at rest. Thank you xxx
Epidural spinal steroid injection: Hi everyone... - Pain Concern
I had a wonderful PT
1) support and extend the spine with exercises as expected
2) address posture to free the pressure at ALL times
A new chair with lumbar support with legs supported when at rest and looking and examining proper support for back and legs during sleep. This allowed lack of pressure while at rest.
Eating at a table was another adjustment of seat
Changing what was supporting the body at rest allowed nerves a lifestyle to change and improve slowly but definitely with proper pT stengthening and exercise
Thank you so much. That is very helpful. I bought an adjustable Tempur bed with a soft memory mattress. This has really made my back worse but because it cost a lot of money I hesitate to change it. I need to find a very good physio and get the right exercises and improve my posture which I know I need to. I thought about doing Pilates as well. There are a lot of areas I need to improve but I need the support and guidance to get me motivated. Still not sure what to do with this epidural steroid injection!
Sounds like you are looking at everything which is great!
Maybe sell the bed on eBay and get one that is firm? Doing everything in your power to address what is causing the pain is typically the best way to go. It is more doable than you think but overhauling your lifestyle is typically the answer. Pilates is probably not best. As it is not controlled enough movement. Get stronger with the exact exercises you need that are targeting the problem. You will get stronger and you will have much less pain.
I got severely injured from a spinal injection so I’m not the right person to ask. The anesthesiologist was not Board Certified and is practicing still til this day. I’m sure many people have had good responses. I’m unfortunately not one of them.
Have you tried Quell the band you wear on your leg to take down the pain?
Acupuncture with pT is also good.
I’m sure your experience will be different.
Let me know how it goes if you have it done. Think positively.
Omg that must have been painful. I am home now and it went very well. They gave me a strong painkiller injection before the procedure which acted like a sedative and I really hardly felt the epidural injection. It was all done under X-ray and only took about ten minutes in all. My legs now feel very tingly and my feet. I have to go back on the 29th June for follow up and to see if it has worked xx
I bought a tempur mattress once. It was great in the shop but after sleeping on it for a few nights I realised I had made a massive mistake and although it cost a lot I decided to get myself another mattress as having a bad back every morning is murder. I now have an extra firm one which is great.
Have had various X-ray guided injections in my lower back. Before the first one I was so nervous, like you but as it is your first one and I take it you have not had surgery it is over before you know it.
Like you. My back is bad when I get up in the morning on this Tempur mattress. I got a soft one which was a big mistake. I have never had surgery on my back but the MRI scan showed quite severe wear and tear and two crushed nerves which he thinks could be the cause of my feet problems. I was taking a low dose of amitriptyline but I am at present withdrawing from them as getting a lot of side effects. I really hope this injection helps even a little bit. Thank you for your reply xx
I had 3 spinal ops but kept on having nerve pain. I was given amitriptyline but it absolutely did not agree with me. After further trial and error I now get some relief by taking tramadol and pregabalin although I am trying to reduce the dose as it plays havoc with my memory.
But seriously get rid of the mattress as no amount of treatment will work if you continue on a too soft sleeping surface every night. It may seem expensive but you do spend a third of your life in bed!
(I found a relative cheap mattress which works for me, it’s the Sealy millionaire extra firm orthopaedic).
Ahh! Thank you. I am just so scared that it could make things worse. I have to try though or I will regret it and wonder if it could have helped. I have an adjustable Tempur bed so I assume I have to have another Tempur mattress as they need to bend. Quite often they sell Tempu mattresses in furniture shops that sell beds so will have a look. I was not offered surgery as he says it is not bad enough for that but offered the epidural injection which he did not think would help my feet but I could try. I am stopping the amitriptyline at the moment and have reduced down to 5mg for a month then I will stop. I have tried Gabapentin and Lyrica but awful side effects. They all make me feel suicidal! I will let you know how I get on xxxx
Hiya. Well all over. It was not as bad as I was expecting. They gave me a painkilling injection before the procedure which acted like a sedative. The epidural was so quick and I hardly felt it. I was so relieved when it was all over. I was in the hospital about five hours and I must admit they were all brilliant. I have a follow up appointment on the 29 June to see if it has worked. Feel nauseous at the moment and hope this wears off soon. Thank you so much for all your support xxx
Two years ago my feet started feeling numb, tingling and I had awful burning. My doctor said I had neuropathy and referred me to a neurologist but all the nerve conduction tests he gave me were normal. I was prescribed with a low dose of amitriptyline. Recently I went to a Spinal consultant and had an MRI scan which showed wear and tear in my lower spine and also two crushed nerves which he said would be causing my feet problems and it is not neuropathy. He offered me this injection but I wanted to see if it helped my feet rather than my lower back. My feet are getting worse and stopping me walking my dogs and wandering round the shops and making me very anxious. I do not have any pain just the burning and numbness mainly in my toes. I do not want to take any risks that will make my feet worse. I will be grateful for any information you can give me as I still have a couple of days to change my mind. Thank you xx
I have recently experienced what you have. I have had back and neck surgeries and recently injured myself during exercise. The pain was the worst I have ever felt. My leg was numb, top of my foot and big toe. I have had injections and a recent one. Prednisone dose pack. Meds. I still couldn’t even sleep in my own bed. I would be up all night for nights in a row. I always forget to go back to the chiropractor. And sometimes I think it’s bullshit. I started going and within one week I was walking, sleeping in my bed, skipping meds.
I have been to a McTimoney Chiropractor which are very gentle but now people are saying not to go to a chiropractor as they can make it worse. I am hoping I will be referred by my doctor to a Physio to get the right sort of exercises. If I do not have this Spinal steroid injection I will never know if it will help my feet or am I clutching at straws!
I am not a doctor but in my opinion I suggest checking that the doctor and especially an anesthesiologist is Board Certified and see if there are any lawsuits that were filed as well as any settlements are important for an informed self opinion.
A second or third opinion when it comes to any procedure especially your spine is never a bad idea.
As for the internet, Go to Pub Med if you want to read what has been medically published.
Thank you. I will look on the internet but if I don't give it a try I will never know if it will help my feet problems which is from two crushed nerves in the lower spine. My feet feel numb, burn and tingle which the Spinal consultant says is coming from my lower back and these crushed nerves. I have been suffering for two years and it has been hell. I have no pain in my feet. They thought I had neuropathy in my feet for two years until recently when I had an MRI scan on my lower back which revealed wear and tear and two crushed nerves. Thank you for your reply.
I’ve had several types of injection in my back, steroid, RF nerve ablation, epidural nerve block and just recently a foranimal injection. I never remember having them but I am sedated, please ask if you can be because I don’t understand why not.
I can’t say however that any of them have worked and I don’t know why, I even had facet joint injections, they’ve tried the lot. I do however get a day’s relief with no pain whatsoever due to the local anaesthetic, it is blissful to recall what it used to be like when I had no pain before my slipped disc emergency. I go back to orthopaedic surgeon in June to tell him my results. I have recurring bulge at L5S1 facet joint arthritis, severe narrowing and they call it degenerative disc disease. I had to have emergency surgery in 2012, it was good for 1 year then has come back and has been chronic pain for 6 years. I too have buzzing, tingling, areas of numbness, heel pain and burning in hip, thigh, calf and outer left of left leg. My reflexes are non existent back of ankle and that area is absolutely numb. I really hope your injections work they certainly do for some. Best wishes, Kay x
I asked if I could have a sedative but he said that I was having an epidural so did not need one. I don't know any difference! In my letter it says to have a light breakfast. My feet make me more miserable than my back. They feel numb, burn and tingle 24 hours a day. The Spinal consultant did not think the injection would work but I felt I needed to try as my feet and back are so hard to live with and really getting me down. I am sorry you are in so much pain too. Have you tried physio or a chiropractor? Thank you for your reply xx
I really hope it gives you some relief, do you take tablets for the nerve pain? I agree that having painful feet has such a knock in effect to your very well being.
There might be a time after your injection it begins to feel sore in the area but you may also hopefully get the blissed relief from it all for longer than I did. Why can’t we have local anaesthetic injections every day???
Seriously though best wishes. I did try acupuncture and chiropractor but every week I went back I was back in pain, he did help stretch me but it hurts too be touched, even a massage and reflexology hurt me now and I have to ask for a very slight touch. I’m told I’m over sensitive to pain and pain management think it’s all a part of PTSD or previous surgical procedures but they have never said it’s fibromyalgia which is what I suspect- who knows? X
I am on a low dose of amitriptyline but I am trying to come off them as I get some awful side effects. Have tried Gabapentin and Lyrica but they are even worse. I can live with the pain in my back but finding it so difficult to live with the burning, tingling and numbness of my feet. The consultant said it is probably coming from the damaged nerves in my back but he is not sure that is the reason. I don't want to take medication but sometimes I am desperate and amitriptyline does help with sleep. I have tried a chiropractor and physio but has not really helped. I am just hoping the injection may help my feet but I am not holding my breath! xx
Go for it. I have had several of these epidural steroid caudal injections and each time have worked wonders with me.I couldnt straighten my back at all ,I was so bent over before the first one and in awful pain due to ruptured discs and exposed nerves. Within a week of having the injection I was almost straight and the pain had lessened considerably. I have an injection roughly every 2 years and they keep me mobile. They dont work straight away ,take a week or so for the full effect so its gradual. The doctor will inject a local anasthetic into your spine first. I can honestly say it is not painful, you just feel a bit of pressure. Afterwards you have to lay on your tummy for a while,the nurse will take your blood pressure, you will be given a cup of tea and then you can go home. No driving for a few days.
Thank you so much. Will let you know how I get on. They said I could have a light breakfast so not sure if they would give me a sedative if I have eaten. He has said there is a possibility that this injection could make things worse which has been worrying me. I know they have to give you a warning that things could go wrong so you won't sue them but I could not live with my feet if they were any worse! So did you have a sedative or does an epidural numb you so you don't feel anything? If it really hurts I may move and cause damage. I realise now I did not ask enough questions! xxx
Hi again, no I didnt have a sedative but before the epidural they put in an injection of local anaesthetic so it was completely numb where they put the injection of steroid in. Maybe you could take a diazepam or a calms pill to soothe your nerves beforehand. Have they given you a leaflet telling you all about the procedure ?
That is awful, them not giving you the info.You need to rest the day you have the injection and not to do any prolonged bending or sitting. It can take up to 3 weeks to feel the full benefit. I thought my first one hadnt worked until one morning I realised I had turned over in bed without a tremendous struggle and even got out of bed without a lot of effort and groaning, They follow it up with physiotherapy afterwards, ask if you can have hydrotherapy as well. I found the hydrotherapy was very helpful and still go to a private pool once a week. You can do things in the warm water that you cant on dry land. I could hardly walk when I started and I swear its the hydrotherapy that is keeping me mobile. Your hospital is lacking in not giving you more info beforehand, I received a 4 page leaflet explaining what would happen and how I would feel and what to do afterwards. Good luck tomorrow, I hope everything goes well for you,xxxx
Hi. Well I am home now and so glad it is all over. They gave me a strong painkilling injection before the epidural which acted as a sedative and I really did not feel hardly anything. I could not believe it when he said "that's it. All over". It was not at all as bad as I was expecting. Afterwards they gave me tea and sandwiches and said as soon as I had a wee I could go home. I feel nauseous now but hoping that will wear off. I have a follow up appointment on the 29 June to see if it has worked or not. He also said like you it might take about three weeks before or if it works. Thank you for your support xxxx
I am so so pleased it all went smoothly for you. Did they give you an aftercare leaflet? I have been thinking of you today. When I have mine I usually rest on my bed afterwards and dont do much at all. The improvement in pain comes so gradually and then one day you think" oh I havent got the pain there anymore" Have they put you on the waiting list for physio ? Dont forget to ask about hydrotherapy, its much easier to excercise in warm water than on dry land. Good luck and take it easy today, remember baby steps, and I hope and pray the injection will help you as it has me.xxxx
I was told not to do any prolonged sitting or bending as it can stop the injection working for the first 5 days. I remember feeling extra hungry the first day too. Be kind to yourself over the next few days and dont do too much. Its better to lay down than to sit. I found a tin of magicool helps the burning in my feet. Its made to cool you down in summer. Only magicool works though not the own brands. You can get it from boots ,tesco etc. I hope you are not on your own, have you someone to help you? Take care and I hope you feelbetter tomorrow.xxxx
My husband is here and my two golden retrievers! Slept really well and did not wake up with such a stiff back. I have never heard of magicool and will definitely follow that up. Is it a cream or gel? Do you get burning in your feet as well and how do you cope? Nobody really knows why my feet are like this. It could be these crushed nerves in my back or maybe small fibre neuropathy caused by damaged nerves in the feet. I just wish I knew! xxxx
Glad to hear you had a good nights sleep. The Magicool is in a tin and you spray it on. They dont know what causes my feet burning, possibly really bad circulation and varicose vein.My feet are very discoloured as well and numb in places. My back is the main problem with lots of prolapsed discs and exposed nerves. Animals are great nurses, I have 2 cats myself and they always know when I am not well and are a great comfort. Another thing I find helpful is the cool pads.They sell them everywhere and also market them for dogs in the summer. I sit with my feet on them and put them in the bed too.They are blue and about 12 inches by 10inches. You dont have to put them in the fridge or anything. I have 2 so when 1 starts to lose effect I use the other. If I think of anything else that helps I will let you know. Hope you feel better today xxxx
Hiya. Our dogs have the cooling coats. I knew they made cooling mats but did not think of buying one for my feet. That is a good idea! I am always putting my feet in a bowl of cold water with some Epsom salts and then rub some hemp active gel on them. Sometimes it helps and sometimes it doesn't. Today my feet are awful and praying this injection has only just flared my feet up and not made them worse. I wish I knew what has caused my burning/numb feet but nobody can be sure. I had an MRI on my lower back and mostly wear and tear with no exposed nerves only the two crushed nerves which he said could be what is causing it but he could not be sure. I have had circulation tests, diabetic tests and nerve conduction tests which were all normal. It is so hard to live with this 24 hour burning xxxx
I am sorry you are suffering so much. Borrow one of the dogs mats and see if it helps with your feet. I have fibromyalgia and have widespread pain and sometimes the painkillers just dont touch it. I am off this morning to hydrotherapy which I love. Doctors dont know everything and they dont like to admit it. I do a lot of research on google to try and find out causes and treatments. I know how you are feeling with the burning feet, sometimes I just want to scream. Hang on there,fingers crossed you will fel better soon xxxxxx
Hiya. Have increased my amitriptyline today and hopefully if and when my feet calm down I will try and reduce them again. I just hope this injection has not made my feet worse. Back to soaking my feet in cold water and the hemp gel. Maybe it is peripheral neuropathy in my feet after all and not the crushed nerves in my back. If the doctors don't know then I am just clutching at straws. Thank you so much for your help and support. I really appreciate it xxxx
My doctors always put the burning feet down to the fibromyalgia. I get cramp as well as numbness too.Its awful,isnt it?Another thing I do is I put a wet towel in a freezer bag and put it in the freezer. I think the cool pads work best for me,I have several so as soon as one starts getting warm I can swap it over. Body shop do a cooling foot lotion with menthol in. Hope you feel an improvement tomorrow xxx
Thanks I will try these suggestions. It is so miserable isn't it. I have joined a group on Facebook for peripheral neuropathy and I have soon realised that what works for one may not work for others. Some prefer heat and others prefer cold. It is a helpful group even though I don't know whether I have got it or not. Friends and family do not understand the pain we are in so it does help to join groups and speak to people who understand and can help xxx
yes you are right.Unless you suffer it you cant possibly understand the pain it causes. Most people think that putting your feet up after a soak in water will do the trick. I try anything once, if it doesnt work I look for something else.so far I havent found anything that stops it permanently,just relief for a while.xxx
Hi Gill. Thank you for your message. My back and feet have been much, much worse and I wish I did not have the epidural. I have been referred for physio on the 14th June and I go back to the spinal consultant on the 21st June. I did ask my doctor if I could be referred to the Pain Clinic and he said “there is no point!”. I really do not know where to go from here. I really do not want to take pain medication but have had to go back on amitriptyline to try and take the edge off the pain and burning. Sorry to have a moan! I hope you are doing okay love Karen xx
Oh Karen, I could cry for you. I am so so sorry the injection didnt work for you and have made things worse. I resisted taking pain killers for years, but in the end I thought that if I was to have any kind of life I just had to. My life was ruled by pain,still can be sometimes, but mostly the y take the edge off it. Have you thought of trying cbd oil? Some people swear by it and I think CBD brothers do samples for you to try. The oil doesnt work for me personally but the cbd vape does. Good luck with the consultant and the physio, dont let them brush you off, you need to be listened to and helped. There is a course that is run all over the uk called the expert patient,its free, 6 weeks, 3 hours and is run by patients who live with chronic pain, who have been trained by health proffessionals. Usually held in clinics or church halls. It teaches you how best to manage your pain, get the best from medical appointments and mostly get what you want from your medical team. Google it, just type in expert patient programme and your area and see what comes up. I wish you luck and hope you get some relief soon, Gillxxx
Thank you Gill. I really appreciate your support and kind words. I will definitely google the expert patient programme and see if we have a group in our area. Where do you live? I live in Northampton. I have tried CBD oil but did not get on with it either and it is so expensive for such a small bottle! I have joined a group on Facebook for small fibre peripheral neuropathy which is quite helpful. Are you on Facebook as there some very supportive groups for different conditions? I had to go back on Amitriptyline as like you I have no quality of life with all this pain. I am just worried that this epidural has caused more damage to these crushed nerves. If the consultant had said to me that it could make things worse then I would have thought twice of having it. All he said was that it may not work! I am hoping the physio will give me some exercises that may help and don't hold out much hope with the Spinal consultant! Thank you once again and take care love Karen xxx
I live in Littlehampton,on the south coast. I think there is a national phone line you can call to find out your nearest epp. Sometimes they put their leaflets in chemists and clinics as the courses are ongoing.The physio may have some alternative suggestions to help you. I hope so.Good luck and take care love Gillxxxx ps I am on facebook Gill Tammam
Thanks Gill. I really appreciate all your help and support. I am definitely interested in the courses as I am a bit of a coward when it comes to 24/7 chronic pain! I would really love to keep in touch if that would be okay. I am Karen Spring from Northampton on Facebook and I will try and search for you. My profile is full of dogs as I am a complete animal lover! We have two golden retrievers Maisie who is six and Katie who is 15 months. Love them to bits! I will let you know how I get on at the physio which is two weeks on Friday and the spine consultant is the week after. Take care. Love Karen xxx
I am a mad animal lover as you will see from my facebook profile. I have 2 burmese cats and 3 tortoises. I had a terrible time last December, I lost 2 elderly cats and 2 tortoises that I had hatched from eggs so they were very special to me. It was 1 death after another in the space of 4 weeks, I am still not over it/ I will look for you when I am next on face book. Having an early night tonight. I went head first through my neighbours greenhouse yesterday and have 2 black eyes , a black and blue face and arms, slashed ear and cuts all over my face. I was so so lucky as one of the cuts was a fraction of an inch from my eye. I tripped over a brick while feeding her tortoises. Your dogs sound lovely,you must send me a photo of them when we connect on facebook. Take care, love Gillxxxx
Omg! I really hope you will be alright! Was there anyone there to help you? We lost our last two golden retrievers within 6 months of each other and I was absolutely devastated. It is the worst thing ever losing a pet and it is something you never get over. I think I found you on Facebook but it would not let me send you a friend request. If you find me you will see dozens of pictures of dogs! Take care and look after yourself. Love and hugs Karen xxxx
The epidural may work for you. I had to try but I didn't bargain it getting worse! I have a follow up at the end of June and will see what the Consultant says but he did warn me that it may not work. If he told me it may get worse I would have had second thoughts! I am on a low dose of amitriptyline so I will continue with them for a while. I just want to get off all medication because of the side effects. I tried CBD oil but it made the inside of my mouth itchy. I would not vape. Let me know if you decide to have the injection xx