Latest update

Hi Ladies

Meeting with consultant gave the news I was dreading. Weekly Taxol had not worked and the scan showed slow progression of cancer.

No more chemo options but given Letrozole to try and slow things down.

She is contacting another hospital to discuss any possible trial options.

Still hoping!

Hope everyone keeping well

Janet

[Lyndy]

Oh Janet... not the news you were hoping for! I think it’s great that you and your oncologist are keen to find a trial... way to go! Sending hugs xx

[Hidden in reply to Lyndy]

Thanks for reply. Chemo worked really well until the halfway point when things started going downhill again.Hopefully there will be a trial out there.

Take care

Janet

[Newbie_2020 in reply to Hidden]

Thinking of you, Janet. I very much hope they'll find you a most suitable trial that gives you only all the best results. Take care.

[SASSY196]

I am so sorry to read this. Hoping that there is a trial for you xxx

[Hidden in reply to SASSY196]

Thank you

[Manchesterlady]

So sorry to hear this Janet, this is such a roller coaster of a disease (that’s a polite way of putting it )your oncologist seems to be trying hard for you .Fingers crossed for you .

[Hidden in reply to Manchesterlady]

Thank you

[Tulips66]

Hi Janet just to say thinking of you & hopefully they will find a trial for you soon. Keep fighting, stay strong & don't give up hope X💐

[Hidden in reply to Tulips66]

Thank you

[delia2]

Hi Janet. This is disappointing news but I'm glad you still feel hope and are looking for trials. I see many references to trials for drugs that are totally different from what we're familiar with. I hope you can find a good one! Lots of hugs.

[Hidden in reply to delia2]

Still hoping. Thank you

[Irisisme]

My heart goes out to you, Janet, and it’s a reminder to me that my own treatment (3rd line Paclitaxel) may not be as successful as I’m expecting.

Please keep us posted on how you are doing. I hope your oncologist finds a trial to suit you. You will have support here but I’m hoping you have your home safety net in place, and ways to counter this horrible disappointment.

My fingers are crossed for you, hopefully your oncologist will find something,

Sending hugs 🤗🤗

Iris

[Hidden in reply to Irisisme]

Hi IrisDiagnosed in 2016 and had 5 lots of chemo.

Still hopeful there is something out there.

Lots of luck with your chemo.

Love Janet

[Irisisme in reply to Hidden]

I was diagnosed in 2016 too. It looks like I’ve been luckier with my treatments than you have, but really it’s the quality of our lives that counts.

Treatments that cause nothing but pain stop us enjoying life but as long as we can still enjoy the company of loved ones and have activities that bring us joy a bit of pain and discomfort are bearable, I think.

[TarbonNZ]

So sorry Janet. Hard to catch a break. Xx

[Hidden in reply to TarbonNZ]

Hi ThereseKnow you are in a similar place. Mentioned cyclophosphamide but appparently not an option in uk.

Hope you have success with it.

Love

Janet

[Katiebairdie]

Hi Janet

Sorry you are in this position. I am exactly the same and have spoken to a hospital this week and am waiting to hear when I can start a trial. It all sounded very positive.

Fingers crossed for both of us.

Hugs

Kathy

[Hidden in reply to Katiebairdie]

Hi KathyThanks for reply. Hope we get to start a trial soon and we get successful results.

Take care, thinking of you

Janet

[Jacky5]

Sorry to hear your news. Glad your consultant is working on it though and hope you find a trial very soon.

Good luck with the Letrozole.

L.x

[Hidden in reply to Jacky5]

Thank youJanet

[Hidden]

Hi Janet - my CA125 has risen again on weekly Taxol so I think it has also stopped working for me. I hope the Letrozole works well for you and if not trials are now opening up again, we must continue to keep hoping, I for one would really like some extra time outside of lockdown. x

[Hidden in reply to Hidden]

Hi LynFingers crossed your CA125 is just a hiccup.

Been reading up on Letrozole and it sounds promising while waiting to find out about a trial.

Wishing you lots of luck

Love

Janet

[Caleda4]

Definitely not the news anyone wants, but a sincerely hope that a trial can be found for you, but in the interim period fingers crossed that letrozole works. Stay strong, x

[Hidden in reply to Caleda4]

Thank you

[Tabor]

Hello Janet, sorry to hear your news definitely not what we like to hear, but please stay strong and positive, I’m Praying God will guide your doctors in the right direction for your care. God Bless you and your family. Pat

[Hidden in reply to Tabor]

Thank you

[Hidden in reply to Tabor]

Thank you.Janet

[Cbyrdie]

Fingers crossed a suitable trial is found. Also praying that the letrozol is helping and that the side effect of it are minimal for you <3

[Hidden in reply to Cbyrdie]

Thank youJanet

[Haeh]

Sorry you didn't get the news you wanted. As regards Letrozole just wanted you to know that I have been on Letrozole for 2 years and 2 months and so far 🤞 every scan is described as stable. There were a few side effects at the start, headaches, hot flushes, but these gradually eased off after the first 4/6 weeks. Best wishes.

[Hidden in reply to Haeh]

HiThat's brilliant news. Not heard of anyone else using it.

Thanks so much and long may it continue working for you.

Love

Janet

[LesleyGB]

So very sorry to hear this - what a disappointment but keeping fingers crossed for a trial for you. x

[Hidden in reply to LesleyGB]

Thank youJanet

[Pianoplayer731021]

Sorry about your news. Hopefully, a trial program will give you good results. Sending you a hug from the U.S. Donna

[Hidden in reply to Pianoplayer731021]

Thanks DonnaUltra sound yesterday showed no Ascites so guess it's disease making me so bloated.

Take care

Janet

[Pianoplayer731021 in reply to Hidden]

Hi Janet, I didn’t have too much Ascites when I was diagnosed. I was very bloated and it was mostly the disease. It can be so uncomfortable. Hope you will feel better with your new treatment. Donna xx

[Kkaren]

Hi Janet, I was put on letrozole following my first line and was on it for over a year with very little side effects at all. I was then changed to tamoxifen but that was a disaster! Hope it works for you. X

[Hidden in reply to Kkaren]

Hi KarenThank you , fingers crossed. Heard a couple of good things about Letrozole so still a bit of hope.

Think I'm just worn out with the chemo at the moment. Looking forward to getting into the garden soon.

Take care

Janet

[Gemimablackvelvet]

So sorry Janet, similar thing happened to me just yesterday. Taxol not working any more. Progressive disease but I have been offered Carboplatin. Not convinced it will work but at least I’ve been offered a kind of lifeline. My oncologist doesn’t particularly agree with trials so hopefully you’re oncologist will find something wonderful for you. You’ll be feeling like I do right now and it’s not good but we’ll get through it one way or another. All the best

Angela xx

[Hidden in reply to Gemimablackvelvet]

Hi AngelaI am deemed platinum resistant therefore no more chemo. Heard a couple of hopeful things regarding Letrozole so fingers crossed.

Carboplatin worked really well for me previously so hope it goes well for you. At least we are still trying.

Just had an hours FaceTime with my 10 year old granddaughter which convinced me I am certainly not ready to give up!

Best of luck with everything.

Janet

[Gemimablackvelvet in reply to Hidden]

Yes we’re still trying. Never give up. Although many times lately I’ve thought of it. Best of luck to you too Love from Angela xx