Caelyx: Hello, is there anyone who has had or is... - My Ovacome

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Caelyx

manumezza profile image
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Hello, is there anyone who has had or is having chemo with Caelyx? My mom had surgery for Stage 3C sierosus ovarian cancer and then had 6 chemo of carbonplatium+taxol then she had 5 months of bevacizumab (avastin) and then cancer was back again... so now Caelyx. Any experiences you may share? Thanks a lot in advance take care everyone

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manumezza
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Hi - I did carbo/Caelyx for my first recurrence, no major side effects, a few mouth ulcers to begin with, and dry hands and feet. My hair thinned a bit on top but only I noticed. I found it much easier than carbo/taxol. Good luck

Litchick profile image
Litchick

Hiya, I have just finished carbo/caelyx that I had for a first reoccurrence.

For me the main side effects were related to the digestive system - but I had meds to help, quite painful mouth ulcers- again my oncologist gave me meds which really helped. On cycle 5 I did experience fatigue and my bloods dropped so 6th cycle delayed a week. I was very sun sensitive and my hair just thinned a bit .

Please remember we are all different in how we react.

All that said I was active through out, walking most days , gardening, jam making etc.

So in my experience it’s very doable . Plus I’ve had what my oncologist said was a very good response.

I hope that helps you and your mum. Good luck.

Jan. X

I had Carbo/Caelyx for first The recurrence. Side effects the same as Litchick below. Started 100% Caelyx reduced to 70% for last 4 months of treatment. I had 3 large tumours but the Caelyx reduced them by 2/3rds. 5 months of Rucaparib which didn’t work very well. So back on Chemo but Taxol this time.

Caelyx does a good job and I’d have continued with it If I could’ve.

All the very best to your mum.

Love from Angela xx

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