Can any one give me any information on how they have been with Caelyx? I am feeling terribly depressed as the oncologist team offered me a trial of a super duper new drug which has been launched by Pfizer. They are so confident in it that they are paying for the trial themselves. Naturally I jumped at the chance to try something else as Avastin stopped working and my CA 125 was shooting up all the time
I then was told that the Pfizer trial was being done by either:-
1.The new drug alone
2.the new drug and caelyx
3.caelyx alone so they could use the caelyx only patients as a yardstick. After having heart and everything else tested I was told that my name had not been pulled out of the hat to try the new drug. Apparently that was the way people were chosen not through any medical reasons simply luck of the draw.
You can imagine what this did to my morale. I felt it was really cruel to build up hope and then simply dash it to the ground.
I now feel worse than I did when I was first diagnosed , I cannot even sleep lying down in bed as it hurts me so much to lie on my side , I have to sit in my reclining chair all night long. I am severely constipated and feel queasy all the time , Can any one tell me whether the side effects of caelyx include this awful constipation and queasiness? It does not seem to prevent any of the pain and when I feel the lumps near my ribs I am sure the cancer has not shrunk one little bit. Has anyone any advice or good news about caelyx? Does this constipation and sickness wear off eventually? Thank you so much. Up to Christmas when the caner was "stable" with the Avastin i had even been planning to return to work and that has now all gone down the tubes, I am devastated on all counts and any little thing makes me tearful as I am so deperssed. Really dont know how to get over this . Any ideas?