I went to see my Oncologist this week to see if I could continue Chemo following my recent colostomy. As I am clear cell she suggested I my be suitable for the Nintedanib (NiCCC) trial. I am going back to see my Oncologist next week to discuss further. Has anyone been on this trial?
Ann xxx
I am on a trial for pembrolizumab
It is working for me and one gets the best of bring looked after and scans . .
I would recommend going on a trial .
I also went on a trial after my kidney cancer . At least you will be monitored.
Very Best wishes Val
I look at the monitoring as a positive as even if I don't get the new drug but get the chemo I will still be monitored. I have lots of questions for my Oncologist.
Ann
Hope they can get you started quickly
So do I. It's the one thing that is bothering me, taking weeks to get accepted when I really need treatment asap as my cancer is on the move again
Thanks Emilee this sounds very positive. I reoccurred in Feb but had to stop chemo due to having a colostomy. My worry is the length of time it will take to get a decision as I could do with treatment sooner rather than later but I really feel I want to go for it
Ann
Wishing you speedy treatment. I am also clear cell and have am iliostomy. Please let us know how you get on.
Will do
Hi Emilee
An ostonomy is an awful thing to cope with along side cancer isn't it? I had emergency surgery 8 weeks ago and I am still feeling sore. I only had 3 out of 6 chemo before the blockage. I am looking at starting the 6 sessions again or the trial. I am struggling with back pain when I walk due to posture so I go to a local hospice for physio and a massage, it is really helping.
I will have a look at your website as I do think gentle movements do help. Good to hear that you are doing well xxx
Ann
clinical trial 
PEACOCC trial is definitely closed
Niraparb trial
PROMPT TRIAL
