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Nintedanib

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Mercedes 15

hi there is there anyone who has idiopathic pulmonary fibrosis and take nintedanib?
hi there is there anyone who has idiopathic pulmonary fibrosis and take nintedanib?
Mercedes15 profile image
Mercedes15
in Lung Conditions Community Forum
23 days ago

Docetaxel with Nintedanib , how nasty is this .

The second is Docetaxel with Nintedanib which I have been told is very unpleasant but really my only choice. The doctor seemed to be strongly against me having the unpleasant option and said it probably wont extend my life. But I am not prepared to give up. I want to live.
The second is Docetaxel with Nintedanib which I have been told is very unpleasant but really my only choice. The doctor seemed to be strongly against me having the unpleasant option and said it probably wont extend my life. But I am not prepared to give up. I want to live.
sally70 profile image
sally70
in Lung Cancer Support
30 days ago

Newbie with IPF

I was diagnosed with IPF in June this year and was started on Nintedanib in September but have had to stop it because it has effected my liver function. I have been told I might be able to start on Pirfenidone if my liver settles down in a few weeks or so.
I was diagnosed with IPF in June this year and was started on Nintedanib in September but have had to stop it because it has effected my liver function. I have been told I might be able to start on Pirfenidone if my liver settles down in a few weeks or so.
Hazel-mary profile image
Hazel-mary
in Living with Interstitial Lung Disease (ILD)
3 months ago
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Strike 3 but not out!

Whether the Nintedanib is having an effect or not, I'm pleased that my lungs are holding on for the time being and I'm delighted that the campaign for Nintedanib to become available to ALL ILD patients with lung scarring at point of diagnosis has finally been successful.
Whether the Nintedanib is having an effect or not, I'm pleased that my lungs are holding on for the time being and I'm delighted that the campaign for Nintedanib to become available to ALL ILD patients with lung scarring at point of diagnosis has finally been successful.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
2 months ago

Weaning off prednisolne

im on Mycophenolate mofetil, nintedanib and prednisolone also oxygen 24/7...phew! Hospital are trying to wean me off prednisolone and i was doing ok got down to 7.5mg daily, then this terrible cough and breathlessness kicked in, now i cough and am breathless anyway but it was much worse.
im on Mycophenolate mofetil, nintedanib and prednisolone also oxygen 24/7...phew! Hospital are trying to wean me off prednisolone and i was doing ok got down to 7.5mg daily, then this terrible cough and breathlessness kicked in, now i cough and am breathless anyway but it was much worse.
cazza34 profile image
cazza34
in Lung Conditions Community Forum
5 months ago

Pirfenidone side effects

I’ve been on Nintedanib for some time now but may be offered a switch to Pirfenidone when I next speak to my consultant. Has anyone had any side effects from Pirfenidone & how bad are they?
I’ve been on Nintedanib for some time now but may be offered a switch to Pirfenidone when I next speak to my consultant. Has anyone had any side effects from Pirfenidone & how bad are they?
Bee61 profile image
Bee61
in Living with Interstitial Lung Disease (ILD)
10 months ago

Bronchiectasis worsening

Have just read about a new drug called Nintedanib . Anyone know anything about this? I will try anything to relieve this condition. Thanks xx
Have just read about a new drug called Nintedanib . Anyone know anything about this? I will try anything to relieve this condition. Thanks xx
auntypank profile image
auntypank
in Bronchiectasis Support
9 months ago

Transplant waiting list imminent/Nintedanib feedback

I've also started on the Nintedanib which, touch wood, hasn't caused any nasty side-effects so far which is great.
I've also started on the Nintedanib which, touch wood, hasn't caused any nasty side-effects so far which is great.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
9 months ago

Back on the transplant list

I just have to keep taking my prednisolone and Nintedanib and hope that they do their job of keeping the scarring at bay long enough to get me into that operation room for the transplant. Look after yourselves everyone and thanks as ever for all your support!
I just have to keep taking my prednisolone and Nintedanib and hope that they do their job of keeping the scarring at bay long enough to get me into that operation room for the transplant. Look after yourselves everyone and thanks as ever for all your support!
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
3 months ago

OFEV (nintedanib)

Happy New Year! I’m currently on OFEV medication for Rheumatoid ILD and wondered if there was anyone else out there also on this medication that could share their experience / give me advice.
Happy New Year! I’m currently on OFEV medication for Rheumatoid ILD and wondered if there was anyone else out there also on this medication that could share their experience / give me advice.
Bonchops10 profile image
Bonchops10
in Lung Conditions Community Forum
1 month ago

Nintedanib offers new hope as transplant recommendation approaches

Nintedanib recently received Nice approval and is now available to ALL IPF and ILD patients provided that they meet the criteria.
Nintedanib recently received Nice approval and is now available to ALL IPF and ILD patients provided that they meet the criteria.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
10 months ago

Docetaxel and Nintedanib. Any experience with these?

Hi. Has anyone had this treatment and can you let me know how you got on. Side effects etc?
Hi. Has anyone had this treatment and can you let me know how you got on. Side effects etc?
magstherunner profile image
magstherunner
in The Roy Castle Lung Cancer Foundation
11 months ago

The best of three evils: Which medication will cause me least grief?

APO-Mycophenolate, Esbriet (Pirfenidone), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking mycophenolate during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
APO-Mycophenolate, Esbriet (Pirfenidone), or Ofev (nintedanib). I unfortunately eat grapefruit for breakfast! Taking mycophenolate during a pandemic, seems foolhardy, and who is to say when the next pandemic will occur. I have a choice NOT to take this drug.
Sclero_99 profile image
Sclero_99
in Scleroderma & Raynaud's UK (SRUK)
12 months ago

Mum - second-line treatment

I asked him about adding in nintedanib and, although he isn't convinced it will add much benefit, he has agreed to mum having it.
I asked him about adding in nintedanib and, although he isn't convinced it will add much benefit, he has agreed to mum having it.
flatterycat profile image
flatterycat
in The Roy Castle Lung Cancer Foundation
2 years ago

Consultant Meeting with Mum

I asked him about Nintedanib combined with Docetaxel and he said that he didn't think it would add any benefits for mum. I just don't understand why he is so pessimistic about it helping.
I asked him about Nintedanib combined with Docetaxel and he said that he didn't think it would add any benefits for mum. I just don't understand why he is so pessimistic about it helping.
flatterycat profile image
flatterycat
in The Roy Castle Lung Cancer Foundation
2 years ago

Medication Enquiry

Medication Enquiry Hi, would be interested to know if anybody else is on 300mg of soft capsules nintedanib? If so how are you managing?, many thanks
Medication Enquiry Hi, would be interested to know if anybody else is on 300mg of soft capsules nintedanib? If so how are you managing?, many thanks
Wolverton profile image
Wolverton
in Lung Conditions Community Forum
2 years ago

I am on Nintedanib for IPF. What’s best for breakfast?

I am on Nintedanib as I am an IPF patient and am type 2 diabetic. I take my medication with breakfast. I have fruit & porridge for b/fast but sometimes get diarrhoea. Any other recommendations for breakfast please to try to avoid the diarrhoea?
I am on Nintedanib as I am an IPF patient and am type 2 diabetic. I take my medication with breakfast. I have fruit & porridge for b/fast but sometimes get diarrhoea. Any other recommendations for breakfast please to try to avoid the diarrhoea?
Leenane profile image
Leenane
in Lung Conditions Community Forum
2 years ago

I am on Nintedanib and am type 2 diabetic. I have fruit & porridge for b/fast but often get diarrhoea. Any other recommendations please?

What’s for breakfast?
What’s for breakfast?
Leenane profile image
Leenane
in My MSAA Community
2 years ago

coming off medication

hi lv just com e of my medication nintedanib, as the side effects were very bad ,l lost one stone in a month , but were do l go now is the question, can you help with some answers . take care Rod Glover Rodders 1941
hi lv just com e of my medication nintedanib, as the side effects were very bad ,l lost one stone in a month , but were do l go now is the question, can you help with some answers . take care Rod Glover Rodders 1941
rodders1941 profile image
rodders1941
in Lung Conditions Community Forum
2 years ago

Medication for IPF

Will ask again about you having Nintedanib or the other medication for IPF! Why can’t I have it ? I suspect my age 76 or money! Too expensive I have paid all my subs so don’t see the problem 😡😡🤬🤬
Will ask again about you having Nintedanib or the other medication for IPF! Why can’t I have it ? I suspect my age 76 or money! Too expensive I have paid all my subs so don’t see the problem 😡😡🤬🤬
Looseloafers profile image
Looseloafers
in Lung Conditions Community Forum
2 years ago
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