Experiences with

Nintedanib

hi lv just started on Nintedanib and l would like to know how long it is before it take effects, l have idiopathic pulmonary fibrosis. take care Rodders

hi l,v been on Nintedanib for 6 weeks ,for the past week lv developed diarrhoeaq does this last now all the time or is it just occasional occurrence.? l have I P F. take care .rodders 1941

hi lv just com e of my medication nintedanib, as the side effects were very bad ,l lost one stone in a month , but were do l go now is the question, can you help with some answers . take care Rod Glover Rodders 1941

Will ask again about you having Nintedanib or the other medication for IPF! Why can’t I have it ? I suspect my age 76 or money! Too expensive I have paid all my subs so don’t see the problem 😡😡🤬🤬

Which drug is best tolerated for IPF, Pirfenidone or Nintedanib ? Any comments or personal experiences?

Nintedanib , Pros and Cons , Hi everybody , I have an appointment on the 6th February to possibly start taking Nintedanib to slow down the process of Idiopathic Pulmonary Fibrosis , I also have COPD and Emphysema , I would like to hear from anyone who has or is taking Nintedanib and I would like to know

I'm told I am getting Nintedanib at the end of April. Hope it helps. I'm also keen to get travelling again but will need oxygen on planes. Anyone know much about this? Anyway, hello everybody- wish you all the best.

Hi , I am a 66 year old male living in the UK , I have just been diagnosed with IPF and have been offered Nintedanib to start early in 2020 after my hernia Op .

He has also been given (only because I asked ) Nintedanib which I understand slows it down, but has side affects. Happy Christmas to you all and have a breathe easy one. Carole 🎄🎅🏻

The University of Barcelona (UB) and Hospital Clínic de Barcelona collaborate with Boehringer Ingelheim Inc. to improve the efficiency of nintedanib, an antiangiogenic and antifibrotic drug, for the treatment of lung cancer.

Nintedanib (Ofev) treatment significantly slowed disease progression versus placebo in a phase III trial involving patients with fibrosing interstitial lung diseases (ILD) other than idiopathic pulmonary fibrosis (IPF), researchers reported.

He is now about to start on docetraxel-nintedanib and we both feel that this is his last chance as nothing else has worked. Is anybody familiar with this chemotherapy or perhaps had it?

In the case of microRNAs, hsa-miR-25-3p and hsa-miR-208a-5p can inhibit genes that the FDA approved drug nintedanib targets. This finding provides an insight for a new microRNA-based treatment approach.

I have been taking this since being diagnosed with IPF in March last year. I had no side effect at all which pleased me no end. Over the last 5 weeks I have started having diarrhoea, just one bout on a daily basis, has anyone else experienced a delayed reaction to the side effects. Robin

coming home average time out of the house to keep a appointment using G4S 12 hours not unusual To take 7 hours or longer to get home at about 11 PM so had to tell guys that l would no longer be able to make the Journey without A continus supply of oxygen , as a result my prescription for NINTEDANIB

At the beginning of 2018 I was put on nintedanib, then in July 2018 I had a stroke. This was a simple stroke i.e. it's main effect was to paralyse the left side of my body. However this is a complication I could do without as the symptoms of IPF get mixed up with the after effects of the stroke.

Any body out there on NINTEDANIB, as a treatment for IPF wiuld be interested in comments,

My dad started this combination last week after immunotherapy didn’t work. Cancer has not gone to his hip and stomach. This combo has hit him so hard vomiting, loose stools, feeling faint. Lack of appetite. Will this pass and if it works and he does on the tablet alone will the side effects just be

Any body out there still alive more than 5 years after Diagnosis of idiopathic pulmonary fibrosis who has been taken nintedanib (OFEV) I would be interested in their opinion of the drug,

The Brompton tell me its possible the Nintedanib. Be interested to hear from anyone on this subject. Robin