Nintedanib NICC trial for clear cell: I posted... - My Ovacome

My Ovacome

18,105 members20,264 posts

Nintedanib NICC trial for clear cell

Ann87 profile image
5 Replies

I posted last month that I had applied for the NiCC trial for clear cell. Well the good news is that I have been accepted on the trial but the disappointing news is that when I was randomised I was allocated chemotherapy and not the trial tablets. I am disappointed as I really wanted to see how good this drug was. So I am now going to start caelyx tomorrow but as I am on the trial I will be very closely monitored. I just hope it works as it is 4 months since I had to abandon my last chemo and my ca125 has been rising quickly

Ann xx

Written by
Ann87 profile image
Ann87
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Neona57 profile image
Neona57

I'm sorry that you have not been allocated the tablets. I have been keeping an eye on this trial as am Stage 3 C clear cell. Have my first post-chemo scan tomorrow.

Ann87 profile image
Ann87 in reply to Neona57

It's odd that I can't find anyone else on this trial to see how it is going. Good luck with the scan tomorrow

85live4ever profile image
85live4ever

Hi Ann, this must be so disappointing you get your hopes up just to be dashed. Ok you are being offered chemo that is a good thing but if you were putting all your holes on trying Ninetdanib then that's a bummer.

Do you know if you could go on the Ninetdanib later on if this chemo doesn't work? Fingers cross it does but if not then ask if that drug could be tried. Good luck keep us up dated take care Cindyxx

Ann87 profile image
Ann87

I thought it was one or the other but I am going to find out a bit more when I next see my Oncologist. It has all been a bit rushed so far. Ann xx

thomas62 profile image
thomas62

Hi An87

Sorry you didn't get the trial drug. I would find out more about the trial as 85live4ever suggests. Good luck.

Gwen xx

Not what you're looking for?

You may also like...

Nintedanib trial

This is not an easy post to write but here goes: I am 10 weeks past last of frontline carbo/taxyl...

Nintedanib trial

Following my post last week I went to Clatterbridge yesterday to discuss the trial further. I saw...

Nintedanib Trial

I went to see my Oncologist this week to see if I could continue Chemo following my recent...

Clear Cell Trial Update

Hi everyone, hope you’ve all had better start to the new year than me. In November I completed the...

Metastic clear cell...

Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't...