Life does get better .....: Having endured major... - My Ovacome

My Ovacome

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Life does get better .....

Carole666 profile image
Carole666
β€’30 Replies

Having endured major surgery and five months of chemotherapy that finished end of January I was told last month that I am 'cured'. Not terminology that I expected to hear from my oncologist!

I am now nearing the end of a three week trip to Florida, my hair is over an inch long and I can now look to the future.

Apart from the worry of quarterly CA125 tests, which fly in the face of the 'cured' verdict, the only challenge left to face is losing the weight I have put on.

So for those of you who are currently struggling with this horrible journey, take heart, it does get better.

🌞🌞🌞

Xx

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Carole666 profile image
Carole666
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30 Replies
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girli1111 profile image
girli1111

What a lovely post to wake up to! So happy for you! m at the other end of the journey for now, still at the diagnosis stage, with an ovarian mass and a worrying CA125 result, Your profile caught my attention as we are apparently geographically close, I had a CT scan (also at Churchill) yesterday so waiting on news for now. Your post has really made me smile, thank you and Happy Easter!

Carole666 profile image
Carole666β€’ in reply togirli1111

Good luck. I had surgery at the Churchill and chemo at Royal Berkshire in reading .

xx

girli1111 profile image
girli1111β€’ in reply toCarole666

That's interesting as I'm in Wokingham so if I need chemo it would be good if it could be closer to home. Was the Bracknell health space an option for you for the chemo?

Carole666 profile image
Carole666β€’ in reply togirli1111

I grew up in Wokingham and now live in hurst!!

I was given the option of Bracknell or reading for chemo with consultant appointments at reading but decided to stick with reading.

I went to Bracknell for the look good feel better workshop and also for one blood test. It is much easier for parking and a nice bright space. The chemo team is the same. All the nurses have been lovely.

girli1111 profile image
girli1111β€’ in reply toCarole666

It's a small world! I used to work in the village school in Hurst! If I end up needing chemo I'd probably try and opt for Bracknell (as husband works 5 minutes away, but wonder if I could keep consultant care at Churchill..... still, I'm getting ahead of myself, results first!

Carole666 profile image
Carole666β€’ in reply togirli1111

Yes, results first....

My consultant was at reading to start with and I was referred to Churchill for surgery only as they have the combined hysterectomy and oncology specialist surgeons

My son was at the village school from 1999-2004 πŸ˜€

Purple-iris profile image
Purple-iris

Fantastic post . Great news and glad you are enjoying your holiday in Florida . Happy Easter love Kim X πŸ˜€πŸ£πŸ’

Carole666 profile image
Carole666β€’ in reply toPurple-iris

😘

Cropcrop profile image
Cropcrop

Lovely post and many congratulations to you on your good news. It's always good when we can read positive posts and it gives encouragement to those of us who are going through the turmoil of diagnosis, surgery and chemo. I'm well over 2 years in remission and still have 6 monthly blood checks which are important and it's reassuring to know we're still being monitored and looked after. Enjoy the rest of your holiday & the weight will come off in time ❀️Xx Jane

Carole666 profile image
Carole666β€’ in reply toCropcrop

😍

Lyndy profile image
Lyndy

Great stuff Carole!!!!xxxxx

Carole666 profile image
Carole666β€’ in reply toLyndy

😍

LesleyGreengran profile image
LesleyGreengran

I'm so pleased for you. May that CA125 stay low for evermore x

Carole666 profile image
Carole666β€’ in reply toLesleyGreengran

😍

IrishMollyO profile image
IrishMollyO

Wonderful news Carole. An Easter message that tells us some women can rise above this vile disease and that some day it could be all of us. Enjoy your precious news. Take care

XXX

Carole666 profile image
Carole666β€’ in reply toIrishMollyO

😍

Chezp profile image
Chezp

Fantastic news.... Go girl go!

🌻🌻

Carole666 profile image
Carole666β€’ in reply toChezp

😍

Harleeboo profile image
Harleeboo

Such lovely news,hope it's the same for my daughter in May 😍

Carole666 profile image
Carole666β€’ in reply toHarleeboo

😍 hopefully it will be

January-2016-UK profile image
January-2016-UK

Fantastic news! Three weeks in Florida too and I found once my hair passed the one inch stage it seemed to grow faster. All the best.

Carole666 profile image
Carole666β€’ in reply toJanuary-2016-UK

Yes, it seems to be gathering speed

It is several shades darker and a little on the curly side. It was dead straight before and had far less grey in it

😍

chrissapam profile image
chrissapam

Well done.....enjoy! Chris x

Carole666 profile image
Carole666β€’ in reply tochrissapam

😍

GBIRVMIC profile image
GBIRVMIC

Wonderful news Carole... after the initial shock, surgery, chemo, losing hair and to come out the other side.. it's lovely to read posts like yours! Just enjoy life.. all the best to you! Love Michelle xx πŸ’

Gleedy profile image
Gleedy

A great feeling and long may it continue xx

Bonnie11 profile image
Bonnie11

Hi Great to read your post and I wish other oncologists were as encouraging and positive. I have same histology and stage as you and without being told, I felt "cured" . However the insistence on 3 monthly survelliance, keeps dragging me back into the system and psychologically it's setting me back as I just want to get on with my life. Personally I just want to see the medics if I have symptoms(ie on my terms) but that's just not on......I have decided to be compliant for now....good luck on your recovery journey

Carole666 profile image
Carole666β€’ in reply toBonnie11

I think for now I still need the reassurance of the next couple of blood tests to be able to fully put this behind me but I can understand where you are coming from

Fingers crossed for low CA125's forever more 😍

wow this post makes me very happy, exactly the same diagnosis, I am half way through my chemo , hearing the word cured would be a dream come true....xx

Carole666 profile image
Carole666β€’ in reply to

I hope your chemo is going well and that you too get the cured verdict.

I feel such a fraud sometimes, I found it relatively easy and now everyone keeps telling me how well I look.

Despite everything I've been through I consider myself very lucky.

I really wish you the best 😍

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