hair loss humira. : started humira in feb 24, and still... - NRAS

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hair loss humira.

Jjj24 profile image
6 Replies

started humira in feb 24, and still no improvement from humira on my ra. Additionally this is my daily hair loss three weeks into starting. I literally have a mouse’s tail left now. Is this normal ??

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Jjj24
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6 Replies
sylvi profile image
sylvi

Sorry i can't help you, I have never heard of it so i suggest you contact your Rheumy team asap darling. Hugs,xxx

Amnesiac3637 profile image
Amnesiac3637

Doesn’t sound normal but you may have something else going on as well. Only thing to do is go back to your rheumatology team - are you able to email them the same picture? - and ask the question. Hope you get that sorted out very soon!

medway-lady profile image
medway-lady

No but MTX did similar to me and it was stopped as hypersensitive so I’d urge you to contact RA team asap.

KittyJ profile image
KittyJ

if you’re newly diagnosed then the stress can cause hair loss but as the others have said, you should speak to your rheumy and GP in case it’s not the humira 🤞🏻

nanny_bee71 profile image
nanny_bee71

According to a friend of mine hair loss caused by Humira is rare and if it happens she was told to contact her rheumy team

dwsurquhart profile image
dwsurquhart

I would speak with your rheumatologist and get into a different medication. This is obviously a side effect and should be reported. When I started on humira, I got hard donut shaped blisters on my hands and feet and no relief from my RA. Stopped the humira and side effects went away (took about 6 weeks to clear my system). Started on Kineret (daily injections at home) no relief. Started on Tocilizumab (Actemra) and got almost instant relief. My CRP was 159 when I started and within 2 weeks dropped to 80, another 2 weeks dropped to 16. After 6 weeks, CRP was down to 2. Now after 7 years, it fluctuates between 0.2 and 3.0. I am very happy with this biologic and have almost a normal life.

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