After 18 years (due to alleged fibrosing alveolitis now found to be bronchiectasis) of untreated RA except NSAID been offered Humira and more than a bit worried.
My immune system which has wrecked my body has also kept me free of all the usual coughs, cold, flue etc.
Has anyone on Humira found their health deteriorate? My joint pain is relatively quiet but muscle pain is pretty bad and I am really tired all the time.
Does Humira help the muscle pain?
I've been on Humira since last September/October and been absolutely fine. I had flu at Christmas but went straight to GP who prescribed antibiotics due to immunosuporession and it quickly cleared up. I have had nothing else since then, not even a cold. Clemmie
I've been on Humira for a year and haven't had any coughs, colds 'flu or stomach upsets. But then I never was prone to them so my experience isn't the best evidence. I do find that small wounds take longer to heal than they used to.
Humira has kept my inflammation markers down more surely than any other drug I've taken and it sorted out my swollen joints very quickly. My impression is that it is the first drug I've taken that is actually protecting my joints. It has also got my haemoglobin back to normal levels after years of anaemia of chronic disease.
I get tendon pain and Humira doesn't touch that, however.
postle2, I have thankfully stayed clear of all the "add ons" which is why I am worried.Your post is great thank you.
Humira took 6+ months to begin to work for me. It has helped with joint swelling and pain, but not with fatigue or muscle pain. I am also experiencing some tummy problems.
But I would say that it is definitely worth trying. I think in general the biologics can have fewer side effects than some of the DMARDS
Hope it turns out to be the one for you! M x
Thank you for that, I have decided to give it a go. I suppose I can always stop if need be.
I've been on Humira since September 2009. It has helped but sometimes I do feel if all this med is doing any good. Hate taking the injection still as I did the first time. I just deal with my day as it comes. Hope you are managing ok.
Been on Humira for 2 yrs and haven't had any colds, flu, nothing. Extra careful about washing hands a lot during the day.
Was on humira for 4years,15 years ago when it first came out.i did get pneumonia,but apart from that it was fantastic,sadly my body became used to it and I have been on several other new drugs since,the RA clinic at Guys hospital in London is fantastic,I have had two knee replacements there,no waiting list and A1treatment, hope humira works for you.
Thank you Rosebaywillowherb, your name reminds me of m y childhood. I grew up during the war in SE London and the lovely rosebay was the first plant to change the rubble of the bomb sites to wonderous colour along with the yellow evening primrose.
I have decided to give H a try but will know on 4th June when I see rheumy nurses.
I know Guys well used to work on Tooley St. (well not ON Tooley St) but in an office at St Olaf House.
Hid Siskin,I have always loved the name of this plant(weed).i grew up in Kentish town, but have lived in Kent for many years. I have had RA for 16 years, after the sudden death of my husband, I'm sure ther is a link between RA and sudden trauma, previous to this I was a fit and healthy woman, I try not to moan to much, but sometimes it's hard to hide the pain, I just think it could have been worse,I:e cancer or something, so I usually have a very positive attitude.(back at (Guys for my infusion on 2nd June).
HUMIRA
Humira
Travelling with Humira
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