pain upon pain

Hello

Not been on in a long time , but wondered how others feel . I don’t know if it’s the RA or I have something else going on ?

I sleep poorly - 3 hours 3.5 if I’m lucky !

I force myself up when I’m still exhausted not at all refreshed

I ache and hurt allover , My elbows are painful , knees , fingers stiff and sore, wrists neck are sore . My joints crack most of the time popping which is sometimes painful even my hips crack .

I can’t sit still because if the pain , I get tired easy standing then my back hurt yet can’t find a comfy position to sit ? Sorry for the whining

Don’t know what’s going on x.

[Sheila_G]

You really need to speak to your Rhumatologist. We are not able to give medical advice. Sorry! Call them today. Good luck.

[Haz58]

You sound like me! I'd say your meds aren't working. Saw my Rheumy yesterday and on top of sulfasalazine she is putting me on enatercet biologic. She has to get authorisation and you need extra blood tests and an x-ray before starting this so in the meantime she's put me on Prednisolone until I can have the biologic. Don't suffer as I know it's hell feeling the way you do! I can't wait to take my first Preds this morning with breakfast as I know they work. Contact your Rheumy helpline only they can help you. My GP just kept adding painkiller after painkiller which did nothing.Good luck. X

[Hidden in reply to Haz58]

Thank you so much x

[janmary]

I had a spell like that last year - you need to contact whoever does your prescribing as your current plan seems to have stopped working. I hope you feel bettersoon

[Deeb1764]

don’t be silent hit the phone to your RA team as something not working and you need help!

[AgedCrone]

Yes that sounds familiar….you sound as if you are suffering a lot of tension.

I’d get a referral to physio if I were you….it’s surprising how effective the exercises prescribed can help relieve RA symptoms..…it sounds boring, but if you keep them up….they work wonders.

I have extensive neck damage,& if I decide I can’t be bothered with my daily physio exercises I really suffer.

Do ask your doctor for a referral…….although more medication is often not the answer….but other methods can help. Hope you get some relief soon.

[Haz58 in reply to AgedCrone]

I had a referral to physio saw her last week. The exercises she gave me I tried and tried but made me have even more pain. You need to get this sort of pain under control then retry the excercises my Rheumatologist said this to me yesterday.

[AgedCrone in reply to Haz58]

That is true….physio is no fun…..unusual new exercises are a shock to the system but gentle slow movement really is the answer. Keeping a joint still because it hurts to move it is very tempting, but only prolongs the hurt.

Try just gently to slowly start the exercises.I’m not saying it’s going to be easy..& it will hurt…..but even a couple of tries each day will be the beginning of getting some relief. If your rheumy agrees maybe a short course of steroids will enable you to get started…then things will be likely to start to improve.

But I think steroids are fools gold….they reel you in…..so if you can manage without …..you will be really pleased with yourself in the future.

[Hidden]

just had a telephone appointment with the Dr who is prescribing me some tablets . Review in an October for Rhuematology x. Thank you all 💛

[Gottarelax]

This is exactly how my RA came on. It was awful and I do feel for you. I was given a 4 week course of prednisolone to knock it on the head. It worked, and I felt great while I was on them (other than some side effects that meant I wasn't getting the sleep). I was put on MTX at the same time. After the steroids the symptoms started to come back. After a few months I had another 4 week course and while the symptoms still started to come back again, they are so much better. I have about 6 hr sleep a night. I still get pain but I can walk again and more importantly can sit down without pain (I had tried all sorts and ended staying in bed with lots of pillows when it was at its worst). It's been about 8 months since the second course now and I do think that they gave my body the boost it needed to get back to some sort of normality. I'm not sure how much the MTX (and now Sulpha) is doing as I've just stagnated since the last pred course.

[Naturechild]

Hi reikimaster. Its hard to figure out whats causing what with all our conditions but I know that getting a decent sleep can make a massive difference to me. Hope you can find a way to get another 3.5hrs of rest to add to uour current 3.5 to help ease things for you.

[Hidden]

Hi all

Feeling better today , was given nerve blockers still not 100% but heat makes me suffer anyway and like others have said - sleeping !

Little improvement with sleep but the pain don’t help with that either.

Thank you for all your lovely messages xxx

[Angels54]

Hi , your popping joints can be a sign of lack of vit D ,or some deficiency, it could also be lo iron count , maybe you should get it checked out 👍