I thought that I would start by saying thank you to you ALL rather than answering indivual blogs.
Syvlia I am on DLA at cares level but my husband upto a year ago was my carer - now I have become his. With all the news about the changes to the disablity l am in the news I am so scared I will lose this help.
We have had my husbands MS nurse visit the home and we have been told we have got to move to a ground floor flat. Not only for his needs but mine as well as I find at the end of a long day I find climbing them the same as facing the north face of Everest each night. Good exercise though and I have found such interestings ways of tackling them. Perhaps rope and tackle would help
I have worked all my life so has my husband so as you have all so righly said I am totally clueless where the benefit system is concerned and working 8.30am to 6pm Monday to Friday does not give me much time to sort things out.
Thank you for comments - I did not know that the job centre has such a thing as a disablement officer. So I think I will start with. that. I am seeing my rummy nurse on the 12th March so again I think it is time to envolve her more fully other than the medical side
I am fighting a loosing battle where work is concerned. If I go to HR maybe things can be talked about and sorted again but the moment my collegue gets out of depth I will be put right back into a situation I don't want be - back on transport.
I am scared at the thought of being totally dependant on benefits and not being able to work. There are so many varibles and un knowns and to be totally honest I don't think I have totally accepted what a rottern disease I have got and will have for the rest of my life. I still feel 18 inside but when I look in the mirror all I see is a grey haired old 42 year old women and I am not quite sure how I got here.
Day by Day I think is the only way I must go as many of us find is the only way to tackle things
As I have been asked I will keep you all posted and by the way thanks for not commenting on my total lack of navigating the british roads
Oh the trials of being a women driver
Love and care to you all