Well they must be identifying people much better now. ! - NRAS

NRAS

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Well they must be identifying people much better now. !

medway-lady profile image
47 Replies

I've just an email saying identified as on register to get a new drug and going to send a PCR test for standby it's from Professor Powis so now definitely now worried. So it's good news in one way and worrying in another. I'm definitely going to keep on being careful and all present shopping is done, Tesco have delivered and I can make bread and get vegetables from the garden or farm shop. So time to hibernate and dream of holidays. We had some awful news this week a friends husband has passed away, and a neighbours son, a really nice young man was killed in a hit and run on a local country road. So am just going to say folks enjoy the festive season, and be careful as danger is all around and we can only live one day at a time.

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medway-lady profile image
medway-lady
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47 Replies
sylvi profile image
sylvi

Oh my darling i am so sorry for your loss. xxxx

Neonkittie17 profile image
Neonkittie17

Sorry to hear the sad news. Never easy anytime but this time of the year always so hard. xx

springcross profile image
springcross

I'm really sorry to hear the sad news, condolences to the families. xx

Summerrain14 profile image
Summerrain14

I am so sorry for the losses this week. Always hard but so much harder at this time of year.

I have just received the email too so am super impressed with how NHS England are working with us. I am increasingly worried too and still working right up until Friday. I am lucky to be working in a hospital and having taxis door to door but I will be so very careful about all outings that are needed. I have been of course but will definitely be keeping myself to myself over this Christmas period. Take care xx

Such terrible news at anytime but really effects us this time of year . I’m sorry for your loss.

I’ve not received this email then again my CEV letters were always weeks later than everyone’s else’s.

Neonkittie17 profile image
Neonkittie17 in reply to

Mine too. It took ten months last year to get CEV due to a rheumatologist nurse hospital error. I’m to update my rheumy tomorrow re my latest blood tests and reply to her email, so I’ll ask her to check I’m on the list for potential antivirals and I’ll copy the email to my GP to be sure. Hope you hear soon. 💗

Stayloose profile image
Stayloose in reply to

I have just read on a note to GPs that due to the 'limitations in coding,' which came to light when compiling the shielding list, some CEV patients won't receive a text or email. However, GPs are to refer eligible people for treatment if they have a positive PCR and it is within 5 days of symptoms.

nomoreheels profile image
nomoreheels

How awful, I'm so sorry. It's hard enough any time of year but nearing Christmas, such a shame. We also had bad news. The wife of the vicar who married us died yesterday, peacefully in her sleep thankfully but it's still sad. She & my mum-in-law made friends in the maternity hospital when my h & her daughter were born. Her funeral isn't until 10th January so her daughter & 2 sons won't have a normal Christmas.

I hope it all works out well in the end with new med & your worries are unfounded.

Gnarli profile image
Gnarli in reply to nomoreheels

Dreadful news at any time but somehow worse now. I offer my condolences go to all her many relatives and friends and wish them comfort and peace

nomoreheels profile image
nomoreheels in reply to Gnarli

Thank you Jan, so kind of you. x

medway-lady profile image
medway-lady in reply to nomoreheels

It is so sad, and his parents are so nice. The village Carol concert was cancelled and everyone is in shock. I still am finding it hard to understand. How his lovely mum is coping I can't imagine. It's a situation no parent should have to experience.

Neonkittie17 profile image
Neonkittie17 in reply to medway-lady

😢💗

Neonkittie17 profile image
Neonkittie17 in reply to nomoreheels

That’s very sad. Sorry. 😢💗

nomoreheels profile image
nomoreheels in reply to Neonkittie17

Thanks J. I do wonder what will happen to the younger of the sons, if he'll be able to manage on his own because he's always lived with his mum. He has learning difficulties & gave up work to care for his mum. She'll leave a huge hole for him I would imagine. x

Neonkittie17 profile image
Neonkittie17 in reply to nomoreheels

Oh my .. I hope someone else in the family can step up and organise social services to assist with some things if needed. x

nomoreheels profile image
nomoreheels in reply to Neonkittie17

I'm sure his sister will do what she's able. She's always looked out for him as his brother has been in the Navy all his working life. That or have him live with her, it's just if her husband is willing to commit. x

Neonkittie17 profile image
Neonkittie17 in reply to nomoreheels

I hope they will help him and maybe his Mum already had that conversation with them if anything happens, etc. x

nomoreheels profile image
nomoreheels in reply to Neonkittie17

You have a point. I hope it's the case. Thanks J. x

medway-lady profile image
medway-lady in reply to nomoreheels

So difficult and an awful gap that can't be filled for the chap. Family is so important and something often taken for granted.

nomoreheels profile image
nomoreheels in reply to medway-lady

You're so right ML.

Gnarli profile image
Gnarli

We're sitting tight too so it will be a very quiet Christmas. My sincere condolences go to your friend, her family and all who knew him.

Deeb1764 profile image
Deeb1764

Sorry to hear about this bad news not good to read.

I also got this text today. I am wondering if they are id CEV by the 3rd primary.

Summerrain14 profile image
Summerrain14 in reply to Deeb1764

I’m not sure it is based fully on the 3rd primary vaccine dose as I had mine in September but it is showing as booster on my health records and not 3rd primary vaccine as it is on my covid vaccine cards but was advised last week by my hospital that I need to have a 4th vaccine now due to meds. Three months after 3rd primary covid vaccine. The email just stated I was sent the email based on my medical records and that I have conditions that qualify for the new covid treatments. Super impressed at the speed of getting this out to us and just await the PCR test kit to keep at home just in case. I just wish that everyone who is eligible received these notifications at the same time as it must cause a lot of anxiety. Working in the NHS too I know all medical notes have certain codes on them depending on someone’s conditions/meds now xx

Neonkittie17 profile image
Neonkittie17 in reply to Summerrain14

Hi Summer, I am not sure it would be identified by the third primary dose exclusively either, as there are a lot of people who aren’t able to have it at the moment such as myself as they didn’t develop antibodies on Rtx and awaiting B cells returning. The antivirals are supposed to be reserved for those very people who are severely immunosuppressed in many ways, so I feel and hope they’ll still look at the former CEV/shielding people who received the Gov shielding letters. I hope you are feeling much lifted after your steroid injection. They’ve always worked so brilliantly for my knees. 💗

Summerrain14 profile image
Summerrain14 in reply to Neonkittie17

Of course Neonkittie. A really good point you make. It’s an awful worrying time for everyone and I hope that everyone gets what they need if needed happens as it should, For anyone who has not been able to have the vaccines or have protection from them such as yourself is at the top of the list.I just know that on patients records I may need to view to support them the best way I can there is a note which states they are in the CEV group but for the life of me can’t remember how it is written.

I have had such relief from the steroid injection and count my blessings that I have. I have sent a thank you email to the rheumy nurses to thank them. Take really good care xx

Neonkittie17 profile image
Neonkittie17 in reply to Summerrain14

The steroid injections have kept me moving so well over the years. They enable you to move so much more and build muscle and strength. Would be lovely if you could get hydrotherapy too. I got biceps and abs like I had before RA due to hydro and I miss it now. I’m really happy for you and know how much this relief means. 💗

I think it’s a good idea for me to add a line to my email re eligibility for the anti virals when I update my rheumy tomorrow for the usual things we are monitoring and makes sense to copy the GP in on it too. I won’t leave anything to chance as I know what a mess a general rheumy nurse made re my CEV last year. 🤨 Have a lovely relaxed Christmas and give Billy a big cuddle from me. xx

medway-lady profile image
medway-lady in reply to Deeb1764

I don't think so, I reckon somewhere there is a computer file of all our personal data including medications linked to our NHS numbers. These days it's really good that technology can help get messages out and image if this were 1918 and the Spanish flu. I'd have been expendable ! lol x

Neonkittie17 profile image
Neonkittie17 in reply to medway-lady

I’m sure there is just that as my rheumy added a commorbidity to my records when the awkward nurse refused to last year.

Summerrain14 profile image
Summerrain14 in reply to Deeb1764

So sorry lovely just sending another message as I didn’t want you to think I was disagreeing with you at all as I have no idea myself. Gentle hugs xx

medway-lady profile image
medway-lady in reply to Summerrain14

No I understand you stay safe and enjoy Christmas. Its been a long year and instead of getting better it is getting worse. I pray that Omicron is not as bad as the Delta and we all get a lot more information regarding the efficiency of vaccines in the coming days. I don't want another lockdown but think its coming and just wish that the government led by example not by fibs and denial. xx

Mmrr profile image
Mmrr

Mixed news medway-lady. I so hope things move along for you early 2022 med wise.

Kags1068 profile image
Kags1068

Hi there!

I've had this email today as well. Very impressed by how organised it seems. I expect lots of us will be receiving it in the days to come.

So sorry to hear about that terrible accident. What an unimaginable thing to happen, and probably at the worst time of year. I feel for all the family and friends. So very sad

I‘m so sorry how awful. Very glad you got your email though xx

Fruitandnutcase profile image
Fruitandnutcase

Oh that is terrible news. Here we are thinking covid is ‘all’ we have to worry about and all the time awful things are happening. It’s really been a dreadful couple of years hasn’t it. I would definitely carry on being careful and enjoy being alive as best we can.

lovemydoggy profile image
lovemydoggy

So sorry to hear this. It's especially sad this time of year.

AndrewT profile image
AndrewT

Dear medway-lady,

I haven't read the 'other' replies, to your Post, because I didn't want then to Influence my answer to you.

I gather that you live in Kent, which is were I spent eight years at a Boarding School. near Maidstone, actually one of the Three Suttons (East Sutton -where I was- Chart Sutton and Sutton Valence (could be ValAnce).

I, like you, have had to 'Isolate', and am now 'Not Too Sure', quite What I can do.... so I only visit my Mother, OUTside 'my' Flats- though I Do visit some other IN 'my' Block. I attend 'Headway Essex' on a Thursday- travelling by a 'Private' Cab (no-one else inside, baring Steve, my Driver.) Whilst at Headway we Observe, quite (very) Strict 'Social Distancing' Rules. They are Very Careful with, things like, 'Sanitising' equipment, using Masks and so on.

I also take, like most (if not All Attenders) 'Take a Lateral Flow Test'- PRIOR to my Attendance.

I'm sorry to hear about your Friend's, very sad, Losses- right On Top of Christmas too! Please do Pass On our collective Sympathy to them. May they be Comforted, by His Love. Even though it might sound a bit Hollow.....

Merry Christmas

AndrewT

medway-lady profile image
medway-lady in reply to AndrewT

Yes North Kent and my son lives in Loose so know Sutton Valance its like all the rest of kent now being covered in houses. We all know people have to live somewhere but it is truly like living in a traffic jam sometimes. I hate driving here now and although I'm in a village the place is the target of developers who want to double it in size. We have a large area of marshland and it is protected but in the long term the new Thames tunnel and possibly a railway line are planned. I agree about sounding hollow and oddly more or less my words on my letter. Faith can be a great comfort at such times so have a very Merry Christmas and lets pray for a better new year. x

Pippy25 profile image
Pippy25

So sorry to hear of your sad news, life is so fragile and you are so right we can only live one day at a time. Take care and sending my sincere wishes to you x

Goldsky profile image
Goldsky

Really sorry to hear your sad news, awful. Stay safe and hope you will be able to have a relaxing Christmas.

VeronicaF profile image
VeronicaF

I am so sorry your going through all this, sending you lots of love xxxx

Evie3 profile image
Evie3

I have just posted the same ☹️🥳

Lizbain1 profile image
Lizbain1

I have told myself the PCR test being sent is a knee jerk reaction due to the omicrom spreading so fast and making sure we have a test available the anti viral drugs are just a new way of treating the illness and making sure we have everything to help us a little like when we get an infection we get antibiotics straight away. X

janmary profile image
janmary

Have a lively quiet Christmas

janmary profile image
janmary

I meant lovely not lively….

Leics profile image
Leics

So sorry you’ve had such terrible news you have all my sympathies.

I had a letter today too regarding the covid treatment and PCR test being sent I’ve just returned a PCR as I’ve had an infection for quite some time which keeps changing symptoms so better safe than sorry as I’m seeing my grandkids and daughter over Christmas and my husbands workplace has started to have an increase in covid infections. In all the time of the pandemic it’s only the 2nd one I’ve done although we have lateral flow tests at home as hubby is an essential worker. Fingers crossed we all stay safe and manage to have some semblance of a festive season this year.

medway-lady profile image
medway-lady in reply to Leics

It shocked me when the two year old granddaughter said covid test when her mum put the swab up her nose. But didn't cry at all, I suppose seen her parents doing it so many times. She the said jam tart looking at the oven! Too clever by half. That infections sounds nasty and I hope the PCR is returned normal and resolves itself very soon. Have lovely Christmas x

Leics profile image
Leics in reply to medway-lady

Thank you so much I hope you have a good one too. My two year old granddaughter reminds her grandad to put his mask on and his glasses too. They’re such a joy it would be so much harder to bare the pandemic without them.

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