Hi, I was diagnosed with JIA at 12 and was on MTX for 9 years, got taken off for not quite a year then put back on. It is really hard as I am attempting College now and the MTX is hitting a lot harder this time.
I always got pretty sick on the morning after taking it ((I take it then go straight to sleep so I do not feel it kicking in.)) and crummy the next 2 days or so. But now I am feeling really bad for 2 or 3 days and still pretty off for another 2, then like 1 day of normal and I am taking MTX again. Before I was on Ondansatron and it helped so much, but since you need special permission to get it, I do not have it this time.
I am having some issues with digestion as well, eating and then getting sick like 8 to 10 hours later and throwing up undigested food, and almost constant diarrea. The diarrea has gotten a bit better the last few days but I am drinking gallons of Matcha green tea ((Which a friend suggested as it is a diuretic)) not sure if it is actually helping or not. Also I am not hungry at all until the day I am taking MTX that night so I am not eating much and a lot of my favorite foods taste really bad for 3 days after MTX.
I am also having extremely itchy legs and well scalp. I do have eczema and mild psoriasis ((Mostly around my hairline and head, but also elbows, knees and shoulders if I get really stressed or sick.)) The itching stops when I am in water, shower, bath, hot tub, but comes back once I get out. Benadryl helps but I do not want to live off it as I am itchy every day.
My first go around no hair loss at all, now after about a month doses ((once a week)) it just started to fall out. It started on Friday and by Monday it was fairly visible, 5 bald spots varying in size ((Two of with were visible before shaving my head)) and a bald jagged line where my hair usually parted. I did get my head shaved yesterday as I could not watch as it fell out, kept a small piece in front cause it is cute but not sure if it will stay in.
I also have Mild to Moderate Asthma ((Has gotten a bit better after being taken off Naproxen daily)), Hypoglycaemia ((Low blood sugar)), Migraines and my blood test say Iron deficient Anemia ((getting tested again in a few weeks)). I am taking MTX once a week, Sulfasalazine twice a day, Folic acid everyday except the day I take MTX, Flovent twice a day, Calcium and Vitamin D supplements every day. I also take Naproxen and Rebeprazole when needed and T1's or other pain medication.
I am not planning on stopping my Meds unless the Doctor says so, but I am very open to suggestions to help with the symptoms and all that as I get thru the next 5 to 6 months ((I get revaluated then and meds may change.)) Also if I can help anyone else I am willing to try.
I hope everyone is having a low or no pain day and is living as they can.