Update : Well I went to hospital and my nurse agreed to... - NRAS

NRAS

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Update

Fifi2 profile image
9 Replies

Well I went to hospital and my nurse agreed to put me on rituximab .i just have to wait for finding and an infusion date . I'm so happy as I'm banking on this to work .Please God it does .

My work has semi agreed to allow me to work on the ground for a temporary period until I'm fit to fly again .I was so worried about all this as I was due to stop being paid next month .

Finally I can see some light .im going to hold off applying for pip etc as hopefully I'll be back to some normality soon .

Thanks to everybody who encouraged me with their replies to my previous post

Onwards and upwards you lovely people :-))

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Fifi2
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9 Replies
allanah profile image
allanah

I have been on a year and I can honestly say it has worked so well! I get the occasional flare but I can do a bit more now than I could . Very pleased with it , it takes A full day but only every six months , so I get a movie on my iPad and relax!!

Fifi2 profile image
Fifi2 in reply toallanah

I'm really banking on this as everything else has failed .Did not think I would be like this when I was first diagnosed 2 years ago .Guess I was in denial because pain wasn't too bad and I was still able to continue with work .This year , for me has been a nightmare

3LittleBirds2 profile image
3LittleBirds2

I can only second what Allanah has said, after trying many medication Rituximab is the only thing that has worked, I'm entirely not pain/symptom free but I never expected to be as I already had damage, the first infusion didn't work as well but again this seems to be fairly common! Everyone has a different experience but the majority of feedback is that it works after all has failed! Wishing you loads of luck with it...let us know how you get on. 😊

Fifi2 profile image
Fifi2 in reply to3LittleBirds2

Thank you so much x

lfu2 profile image
lfu2

Good luck with the rituximab. I must mention to you that you do need to be patient. My first infusion took three and a half months before I felt any benefit, but when it happened it was great. It makes a huge difference to me. Every subsequent infusion has taken less time than the one before.

Fifi2 profile image
Fifi2 in reply tolfu2

Oh I do hope so .fingers crossed :-)

madonbrew profile image
madonbrew

Hi,I somehow keep getting posts from this site&couldn't think why as I don't have RA...but then I realised it was cos of the rituximab...I have a very rare autoimmune disease affecting my pancreas &kidneys&have bad asthma too-possibly not asthma but connected to AI stuff.Anyhow, I too am also waiting for ritux other than it's not licenced yet to treat my particular illness so Drs are having to go through a complicated process for me to get it.They're hoping it will stop my body attacking itself.

Glad some of you are finding it helpful. I too am worried like some of you about the side affects.Anyway,I have appreciated reading your posts about it!

Dee

Fifi2 profile image
Fifi2 in reply tomadonbrew

Hi Dee ...from what I've read there are very few side effects from this drug .

Good Luck !

Sheila_G profile image
Sheila_G

Great news. x

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