So I emailed the rheumy nurse and told her how I feel and how I need some help as I can;t keep working full time feeling like I do and falling asleep at work from the fatigue. She asked me if my GP had called rheumatology and asked for an emergency appt and I told her I don;t think that he knows he can. There is a very distinct line here about what GPs and what specialist do and GPs don't step over that line. Anyway after some discussion about how we the patients then get left, like I have been since April in pain and not coping much becasue if this stupid unwritten law, she agreed that she will get me an appt earlier. So instead of the 17th I now go on the 10th August. I said well what do I do until then and the answer was go back on pred. I said well unless I take at least 15mg a day it will be pointless. Apparently the drs don't like you on that dose for that length of time so I can take 15mg for a couple of days and cut back to 5mg a day. I may as well take nothing really at 5mg.
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