This title is absolutely my silliest by far. My kingdom is going to represent my body for the purpose of this post. I went to a follow up with the vascular surgeon last week. He said my fistula would be ready to use if needed in two weeks but that hopefully it would be more like 2 years until I need it. Very nice of him to say. I'm hoping he's right, but he might not be. Gave me a little sad feeling but always thankful medicine can help and do the things we need.
Still getting use to the pulse in my harm. I go to the nephrologist in a few weeks. It's a feeling of anxiety over going to see him. My labs get emailed to me before we meet because of the lab I use so I look at it. I don't always know what I'm looking at but I look for the creatine number. My heart does flip flops when I see that number. I know it will worsen. I don't know when to start letting people know publicly what I'm going through, but I think it can only help my chances of finding/getting a kidney. Silly as it sounds I've never been super public so it feels strange telling everyone what I'm going through. I've had a few people offer to give me a kidney but just directly to me and they haven't been the right blood type.
I have one more paper for the semester then I get 2 weeks off and I start again. For now I'm reigning over my kingdom and taking as good of care of myself as I can.
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HipHopQueen
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Love your attitude! I'm very glad you're busy taking care of yourself! You're wise in anticipating your future needs, it avoids the need for disruptive and frightening emergency interventions and hospitalizations. You're also apparently in touch with a transplant center and that's fantastic. In the ideal world, it would be nice if you can transition to a new kidney without needing dialysis. I truly hope that's the case for you. Go forth, Queen, and may your kingdom prosper. I sense good things will be coming to you!
Glad your surgery went well and you are feeling better. From my experience, going public with my battle and of me being a kidney dialysis warrior was the one of the most freeing things I have done in a long time. I kept everything hidden. I never let anyone know how bad I was starting to feel. I kept my fears and emotions to myself. I started to avoid people because it was becoming harder and harder to keep up the act.
One day I woke and laid it all out there on my Facebook page. I also started telling people in work which is a big deal for me because I am a professional and keep my personal stuff at home. It has no place in the office.
As it became common knowledge I felt more and more at peace. I didn't have to pretend any longer. I found people were much more gracious and not in a pity sort of way. I highly recommend doing it yourself and tell the world you too are a kidney warrior!
I need to hear that Lees. I need to sit down and write it and I know will feel good to be free and just have it out there. I too really don't want pity, just support and uplifting words of kindness. Whatever happens I'm going to do this thing with as much grace and honesty as I can. Sound the trumpets... here come the Queen lol🙂
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