TennKid55

[TennKid55]

Greetings to all. This is my first time on website. Posts I have read so far have been enlightening. Quick overview of my story as follows: I was under renal doc for years who seemed to be in ignore mode regarding my kidney function. Creatinine, BUN, and GFR (all indicators to monitor kidney function) had progressively reached critical stage by Feb 2024. My Endocrinology NP couldn't believe Renal doc had not recommended dialysis with a GFR of 7 and critical Hemoglobin drop. Within two days of Endocrinology visit I was in ER in Renal and Respiratory failure. Fortunately I was seen by another doc in the same practice and it was understandable that there would be no more "care" from original doc. New doc was a life saver. I had a chest port placed while in hospital May 2024. Left wrist Fistula June, unsuccessful Fistulagram Oct 2024. Vein did not mature in width. Second Fistula in left upper arm Nov 2024. Within week of surgery hand numb and cold. Second opinion emergency followup and ultrasound revealed blocked blood flow to hand. I was diagnosed with Steal Syndrome. Immediate surgical ligation performed to divert fistula and restore blood flow to hand. Hand saved but still minimal feeling. Now you're up to speed on my story. Coming up on a year with dialysis using original chest catheter. Docs aren't pushing for me to have another fistula try at this time. I'm wondering what are other's experiences with Steal Syndrome and/or long term use of catheter for dialysis? Thank you in advance.

[Bassetmommer]

Taterpig...what a name. Just remember, some one has to graduate last in their med class. So sorry you have been through a lot. Hope it goes better from now on.

[TennKid55 in reply to Bassetmommer]

Hope my name gave you a chuckle.😀 You're right about there being a lower rung in med classes. I'm a firm believer in that obstacles can strengthen your resilience and make you stronger. Thank you for the positive vibes. Same to you, as well.