Inclusion Body Myositis - Information & links

[Jo-Goode]

◾Guide to Inclusion Body Myositis - Written by Dr Hanna

◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy

◾General Leaflet About Myositis UK

Link: myositis.org.uk/inclusion_b...

Myositis specialist clinic/centre

To request a NHS referral/second opinion via your GP (in the unlikely event your GP is uncooperative, a way round it is a one off private consultation with the Myositis specialist, and they will write to your GP on your behalf).

Dr Michael Rose, Kings College London. Member of the UK Myonet group (the research/advocacy group of doctors and researchers in the UK).

Advisor to Myositis UK.

kch.nhs.uk/service/a-z/musc...

QUEEN SQUARE CENTRE FOR NEUROMUSCULAR DISEASES:

Dr Mike Hanna

Dr Pedro Machado

Dr Matt Parton

Members of the UK Myonet group (the research/advocacy group of doctors and researchers in the UK). Advisor to Myositis UK

cnmd.ac.uk/…/clin…/Muscle/I...

[bon-bon]

I am following Jo's advice and posting here to see if The IBM link will start moving. Thanks Jo. Hope it works.

[Wighton in reply to bon-bon]

Hello Bon-Bon, a bit like you feeling things have ground a bit to a halt, but keep on trying. Wighton

[bon-bon in reply to Wighton]

Hi Wighton, nice to see you post. Yes, seems like people post once and then they are gone. Have you tried the U.S. site? It is a bit better, but not as popular as it used to be. Some other British people post there, I notice. Best,

Bon

[Tony-Burton]

Still posting on old site