Tiredness !!

[drummer-boy]

Hi as I mentioned previously I have just been diagnosed with IBM,

does anyone else who suffers from it experience extreme fatique ?

I get so so tired and have to go to bed !!

Thanks

[Lisalou19]

Do you follow the Facebook page? A lot more activity and information on there for you xx

[drummer-boy in reply to Lisalou19]

Hi thanks for your reply.

What is the name of the page please?

[Lisalou19 in reply to drummer-boy]

Myositis UK forum.

Lots of interesting reads there.

I have suspected Myositis. They don’t know what one , but I get extremely tired after any form of physical activity x

[drummer-boy in reply to Lisalou19]

I must admit it took a while for me to be diagnosed.

Hope you find out something soon

[Jo-Goode Administrator in reply to drummer-boy]

Link for Myositis UK Forum on facebook facebook.com/groups/Myositi...

[bon-bon]

I have to go for a nap in the middle of the afternoon. Even then, I fall asleep while watching TV in the evening. Yes, I get very tired.

[drummer-boy in reply to bon-bon]

Thats reassuring to hear. I have to go to bed in the afternoons too. and cannot stay up late in the evenings.

In the mornings I can hardly get out of bed.

Thanks for responding.