Tiredness !!: Hi as I mentioned previously I... - Myositis UK

Myositis UK

1,264 members515 posts

Tiredness !!

drummer-boy profile image
7 Replies

Hi as I mentioned previously I have just been diagnosed with IBM,

does anyone else who suffers from it experience extreme fatique ?

I get so so tired and have to go to bed !!

Thanks

Written by
drummer-boy profile image
drummer-boy
To view profiles and participate in discussions please or .
7 Replies
Lisalou19 profile image
Lisalou19

Do you follow the Facebook page? A lot more activity and information on there for you xx

drummer-boy profile image
drummer-boy in reply to Lisalou19

Hi thanks for your reply.

What is the name of the page please?

Lisalou19 profile image
Lisalou19 in reply to drummer-boy

Myositis UK forum.

Lots of interesting reads there.

I have suspected Myositis. They don’t know what one , but I get extremely tired after any form of physical activity x

drummer-boy profile image
drummer-boy in reply to Lisalou19

I must admit it took a while for me to be diagnosed.

Hope you find out something soon

Jo-Goode profile image
Jo-GoodeAdministrator in reply to drummer-boy

Link for Myositis UK Forum on facebook facebook.com/groups/Myositi...

bon-bon profile image
bon-bon

I have to go for a nap in the middle of the afternoon. Even then, I fall asleep while watching TV in the evening. Yes, I get very tired.

drummer-boy profile image
drummer-boy in reply to bon-bon

Thats reassuring to hear. I have to go to bed in the afternoons too. and cannot stay up late in the evenings.

In the mornings I can hardly get out of bed.

Thanks for responding.

Not what you're looking for?

You may also like...

mistaken diagnosis

Hi I’m just wondering if myositis can be mistaken for PMR ? I am asking because 2 GPS say i have...

Anyone have Drug-induced Myositis?

Hi, I've had a diagnosis of MCAS (Mast Cell Activation Syndrome), but I had an argument with my...

Anyone get calcinosis?

I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it...

IBM people, please post

I have just found my way to the new site. I hope all those with IBM will as well. I miss your...

Could I have dermatomyositis?

Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses...