Today is Rare Disease Day!: Today is rare... - Myositis UK

Myositis UK

1,264 members • 515 posts

Today is Rare Disease Day!

Jo-Goode profile image
Jo-GoodeAdministrator
•0 Replies

Today is rare disease Day 😬

It's a day where rare diseases join together, from all over the world, to highlight the issues faced with having a rare disease.

rarediseaseday.org/

Written by
Jo-Goode profile image
Jo-Goode
Administrator
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

mistaken diagnosis

Hi I’m just wondering if myositis can be mistaken for PMR ? I am asking because 2 GPS say i have...

Anyone have Drug-induced Myositis?

Hi, I've had a diagnosis of MCAS (Mast Cell Activation Syndrome), but I had an argument with my...

Anyone get calcinosis?

I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it...

Steroids

Just started 60mg prednisolone this morning and will be taking a reduced dose over the next seven...

IBM diagnosis today

Hi All. I have just been diagnosed with inclusion body Myositis and I am just overwhelmed by this...