G'day my beloved family. A good day so far for YOU, with limited aches and pains and an overall feeling of acceptance. In total honesty, we have a progressive illness, it does not get better. The best that YOU can hope for is a SLOOOW slide downhill, something like honey, or something thicker, maybe a treacle.
I have noticed some comments about people saying " oh you look so good", I thought about how I would respond to this, of course, I had the usual crude comments but I thought there had to be a more creative way to speak my mind. Of course, these are merely a guideline for YOU, think of your own creative responses, have fun with them,
YOU have ms. but YOU look so good.
Response:
Yes, I do thankyou.
Today is a good day so yes I do.
Today is a good day so thank you for noticing.
I hide it well, thanks for not noticing.
It is a brain, Spine Central Nervous System (CNS) illness so YOU will not notice any problem but, Thankyou I was feeling very insecure today so thank you for not noticing.
If appropriate, Sorry I have a spouse, this can lead to all sorts of things so be careful here.
Do YOU see my point? Do not look at yourself as poor pitiful me, SEE yourself as a strong worthwhile Homo Sapien. Whether YOU feel like it or not show that front to the world. The world does not see me as the bloke wearing adult undies ( diapers) that he probably just wet in. They see the image I want, strong and confident. They do not see the turmoil inside, they never will.
Portray the image that gives YOU strength, say the words that give YOU power. Do NOT sell yourself as a victim.
Live well and find your own way, 2 weeks or 20 years into your journey.
Royce
