27 Jun 2023 Hmm it appears that I can... - My MSAA Community

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27 Jun 2023 Hmm it appears that I can't or shouldn't say certain things

RoyceNewton profile image
9 Replies

G'Day fellow Relapsing-Remitting ms (RRms) family members, especially YOU newbies (Newly Diagnosed). Back 23-odd years ago I did not know where to look or even what to ask about this illness. I went to a support group meeting and saw all these women in wheelchairs and it scared me terribly. Was this my future? Hmm, I was a 28-year-old former pilot. Not exactly the best beginning. Today 20? years later, life is pretty good. I have a 23+ year marriage and go to the gym 3 days a week and walk about 5000 steps a day when I am not being lazy and watching television.

YOU can do this as well. There is no reason why not. Listen to your doctor and ask for the newest strongest medicine available right now. Avoid wait and see people, the longer YOU wait the worse for YOU in my experience. You can come back a little, but it takes a really good doctor, so do not expect it. I have seen it happen though, yes personally.

Strive always, to take this illness seriously and to be a little better every day in some way. Avoid doom and gloom people, their story does not have to be yours. This is a huge illness, as they say, no to ms people are exactly the same.

Go to Amazon and get yourself "The brain" and "The Ventral Nervous System" charts. It is helpful. look them over, study them a little,

Good luck on your journey. Remember newest strongest medine and I am NOT a doctor so talk to yours.

Royce

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RoyceNewton profile image
RoyceNewton
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9 Replies
NorasMom profile image
NorasMom

Keep it up, Royce. The forum has a couple people who can't seem to help being snarky, catty, and argumentative all the time, but just ignore them. I'm one of those who prefers to look at the bright side, and you help with that.

RoyceNewton profile image
RoyceNewton in reply toNorasMom

Thank you very much, so nice of you to say. Look after yourself and stay well.

Neworleanslady profile image
Neworleanslady

I didn’t know you were a pilot

RoyceNewton profile image
RoyceNewton in reply toNeworleanslady

I was way back when, probably not a good one, but little to my knowledge I was playing with ms way back then.

Neworleanslady profile image
Neworleanslady

do tou drive a car now?

RoyceNewton profile image
RoyceNewton in reply toNeworleanslady

No, the wife does that, I can rice a 3 wheel scooter/

Neworleanslady profile image
Neworleanslady

thank the Lord for supportive spouses.

Cutefreckles72 profile image
Cutefreckles72 in reply toNeworleanslady

I agree. 100%.

Xvettech profile image
Xvettech in reply toNeworleanslady

Yeah and you know what the non supportive (like the pos i made the mistake of marrying) ones can do!

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